{"title":"Enhancing quality of life in multiple sclerosis: A study protocol to evaluate the impact of a therapeutic education program.","authors":"Iman Akhrif, Sara Skalli, Samia Karkouri","doi":"10.4103/jehp.jehp_1351_24","DOIUrl":null,"url":null,"abstract":"<p><p>Multiple sclerosis (MS) is a chronic inflammatory condition that causes lesions leading to both physical and psychological impairments, significantly affecting daily life. Therapeutic education has been identified as a valuable approach in managing chronic diseases, including MS. This study aims to develop a structured therapeutic education protocol specifically for MS patients, with the goal of demonstrating its positive effects on quality of life. This prospective, descriptive study will examine the effects of a therapeutic education program on the quality of life in MS patients. The study will be conducted at Rabat University Hospital's Physical Medicine and Rehabilitation and Neurology departments. Participants will undergo individualized educational sessions and interactive workshops. Evaluations will be performed at baseline, 3 months, and 6 months using the Multiple Sclerosis Quality of Life-54 (MSQOL-54) and the Measure of Urinary Handicap (M.H.U) scale. Effective management of MS necessitates personalized care strategies, including therapeutic education, which can enhance patient knowledge, self-management, and overall quality of life. This study aims to provide insights into how structured educational interventions can impact MS management and patient outcomes. This study protocol outlines an investigation into a therapeutic education program for MS patients. By addressing disease understanding, symptom management, and psychosocial support, the program seeks to improve patients' quality of life. Future research should assess the long-term effects of such interventions and compare their efficacy with other MS management approaches.</p>","PeriodicalId":15581,"journal":{"name":"Journal of Education and Health Promotion","volume":"14 ","pages":"49"},"PeriodicalIF":1.4000,"publicationDate":"2025-02-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11939989/pdf/","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Education and Health Promotion","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.4103/jehp.jehp_1351_24","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2025/1/1 0:00:00","PubModel":"eCollection","JCR":"Q3","JCRName":"EDUCATION, SCIENTIFIC DISCIPLINES","Score":null,"Total":0}
引用次数: 0
Abstract
Multiple sclerosis (MS) is a chronic inflammatory condition that causes lesions leading to both physical and psychological impairments, significantly affecting daily life. Therapeutic education has been identified as a valuable approach in managing chronic diseases, including MS. This study aims to develop a structured therapeutic education protocol specifically for MS patients, with the goal of demonstrating its positive effects on quality of life. This prospective, descriptive study will examine the effects of a therapeutic education program on the quality of life in MS patients. The study will be conducted at Rabat University Hospital's Physical Medicine and Rehabilitation and Neurology departments. Participants will undergo individualized educational sessions and interactive workshops. Evaluations will be performed at baseline, 3 months, and 6 months using the Multiple Sclerosis Quality of Life-54 (MSQOL-54) and the Measure of Urinary Handicap (M.H.U) scale. Effective management of MS necessitates personalized care strategies, including therapeutic education, which can enhance patient knowledge, self-management, and overall quality of life. This study aims to provide insights into how structured educational interventions can impact MS management and patient outcomes. This study protocol outlines an investigation into a therapeutic education program for MS patients. By addressing disease understanding, symptom management, and psychosocial support, the program seeks to improve patients' quality of life. Future research should assess the long-term effects of such interventions and compare their efficacy with other MS management approaches.