Caregiver Burden in Parents of Children With Type 1 Diabetes in Bahrain: A Qualitative Study.

Abstract

PurposeThe purpose of the study was to explore caregiver burden among parents of children with type 1 diabetes (T1D) in Bahrain, focusing on emotional, physical, and social demands.MethodsA qualitative research design using phenomenological approach was used to conduct in-depth interviews with 14 parents of children and adolescents with T1D, selected using purposive sampling. Data were collected through in-depth interviews based on Chou's framework of caregiver burden, covering financial, physical, social, spiritual, and emotional stressors. Interviews were conducted in Arabic, audio-recorded, and transcribed. Thematic analysis was performed using Taguette, with themes validated through peer debriefing and member checking.ResultsFour key themes emerged: managing daily health needs, adapting to a new reality, balancing work and personal life, and the need for caregiver support. Parents reported significant emotional-, physical-, social-, and cost-related demands. Managing daily health needs was accompanied by constant monitoring and insulin administration. Adapting to a new reality required lifestyle adjustments. Balancing work and personal life were challenging due to caregiving duties.ConclusionThe findings highlight the substantial burden faced by parents of children and adolescents with T1D in Bahrain. Parents expressed a need for appropriate support systems addressing both their children's medical needs and their own well-being, which can improve the quality of life for both caregivers and their children.