‘The seagull theory: Where people fly in, gather information… fly out and nothing ever comes about’: A qualitative exploration of barriers and enablers to research participation among adults with type 2 diabetes living in Australian rural communities

IF 3.2 3区医学 Q2 ENDOCRINOLOGY & METABOLISM

Diabetic Medicine Pub Date : 2025-03-23 DOI:10.1111/dme.70027

Joanne Jordan, Jo-Anne Manski-Nankervis, Meaghan Read, Timothy Skinner, Jane Speight, Elizabeth Holmes-Truscott

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Abstract

Aim

Rural communities are under-represented in diabetes research, with implications for the generalisability, implementation and reach of research outcomes. Increased efforts to conduct diabetes research in, or inclusive of, rural communities are predicated on effective participant recruitment. This study explores the motivations for, barriers to and enablers of research participation among adults with type 2 diabetes (T2D) in Australian rural communities.

Method

A phenomenological qualitative study was conducted involving adults (18+ years) living with T2D in rural communities, using multi-modal recruitment approaches and purposeful sampling across Australian states and gender. Audio-recorded, semi-structured interviews explored participants' perceptions of research participation. An abductive coding approach was undertaken to identify salient themes.

Results

Twenty-one participants were recruited across all six Australian states, median (range) age of 63 (41–78) years and 65% were women. Barriers to research participation include diabetes stigma, lack of community awareness of T2D, few research opportunities, geographical distances of rural communities from research sites and individual time and resource constraints. Enablers strongly focused on increased engagement and involvement of rural communities in research and offering education or access to diabetes care as part of research activities. Motivations for research participation included opportunities to help or advocate for rural and T2D communities and highlight under-resourcing of rural healthcare services.

Conclusion

Study findings inform practical strategies that may improve recruitment mechanisms for T2D research in rural communities, for example, community-driven recruitment methods. Evaluation of the effectiveness of such strategies in research practice will be needed.

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“海鸥理论：人们飞进来，收集信息……飞出去，什么也没发生”：对澳大利亚农村地区2型糖尿病成年人参与研究的障碍和促进因素的定性探索。

目的：农村社区在糖尿病研究中的代表性不足，这对研究结果的普遍性、实施和范围都有影响。增加在农村社区或包括农村社区开展糖尿病研究的努力是建立在有效招募参与者的基础上的。本研究探讨了澳大利亚农村地区成人2型糖尿病（T2D）患者参与研究的动机、障碍和促进因素。方法：采用多模式招募方法和跨澳大利亚各州和性别的有目的抽样，对农村社区中患有T2D的成年人（18岁以上）进行了一项现象学定性研究。录音的半结构化访谈探讨了参与者对研究参与的看法。采用了溯因编码方法来确定突出主题。结果：21名参与者来自澳大利亚所有六个州，年龄中位数（范围）为63（41-78）岁，65%为女性。参与研究的障碍包括糖尿病污名化、社区缺乏对糖尿病的认识、研究机会少、农村社区与研究地点的地理距离以及个人时间和资源限制。推动者着重于增加农村社区对研究的参与和参与，并将提供教育或糖尿病护理作为研究活动的一部分。参与研究的动机包括有机会帮助或倡导农村和T2D社区，并强调农村保健服务资源不足。结论：研究结果为可能改善农村社区T2D研究招募机制的实用策略提供了信息，例如社区驱动的招募方法。需要在研究实践中对这些策略的有效性进行评估。

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来源期刊

Diabetic Medicine 医学-内分泌学与代谢

CiteScore

7.20

自引率

5.70%

发文量

229

审稿时长

3-6 weeks

期刊介绍： Diabetic Medicine, the official journal of Diabetes UK, is published monthly simultaneously, in print and online editions. The journal publishes a range of key information on all clinical aspects of diabetes mellitus, ranging from human genetic studies through clinical physiology and trials to diabetes epidemiology. We do not publish original animal or cell culture studies unless they are part of a study of clinical diabetes involving humans. Categories of publication include research articles, reviews, editorials, commentaries, and correspondence. All material is peer-reviewed. We aim to disseminate knowledge about diabetes research with the goal of improving the management of people with diabetes. The journal therefore seeks to provide a forum for the exchange of ideas between clinicians and researchers worldwide. Topics covered are of importance to all healthcare professionals working with people with diabetes, whether in primary care or specialist services. Surplus generated from the sale of Diabetic Medicine is used by Diabetes UK to know diabetes better and fight diabetes more effectively on behalf of all people affected by and at risk of diabetes as well as their families and carers.”