Involvement of Fathers and Siblings in Home Rehabilitation Programmes of Children With Neuro-Developmental Delay: Insights From Rehabilitation Professionals in Bulawayo, Zimbabwe

IF 1.8 4区医学 Q2 PEDIATRICS

Child Care Health and Development Pub Date : 2025-03-24 DOI:10.1111/cch.70060

Precious Madzimbe, Jermaine Dambi, Lieselotte Corten, Soraya Maart

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Abstract

Background

Neuro-developmental delays (NDDs) present significant challenges for children and families, especially in low- and middle-income countries (LMICs). Full family participation in home rehabilitation programmes is essential for optimal functional outcomes. However, the involvement of fathers and siblings is suboptimal and underexplored. This study investigates the perspectives of rehabilitation professionals on the involvement of fathers and/or siblings in home rehabilitation programmes for children with NDD in Bulawayo, Zimbabwe.

Methods

A qualitative exploratory study was conducted. Data were collected through focus group discussions (FGDs) with 18 rehabilitation professionals. The FGDs were transcribed verbatim, coded, and thematically analysed.

Results

Rehabilitation professionals highlighted the critical role of fathers and siblings in home rehabilitation; noting fathers' emotional support and provision of financial stability and siblings' contributions to social interactions and play therapy. Barriers to involvement included cultural norms and time constraints for fathers, while siblings faced challenges such as limited age-appropriate understanding and the emotional burden of coping with the caregiving role.

Conclusion

According to rehabilitation professionals, involving fathers and siblings seems important for successful home rehabilitation of children with NDD. Addressing cultural and practical barriers to participation requires context-specific strategies, including culturally sensitive community outreach programmes and targeted interventions to promote family-centred care. Such efforts could help overcome these barriers, fostering greater participation of fathers and siblings and enhancing the effectiveness of home rehabilitation within the local context.

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父亲和兄弟姐妹参与神经发育迟缓儿童的家庭康复计划：来自津巴布韦布拉瓦约康复专业人员的见解

神经发育迟缓（ndd）给儿童和家庭带来了重大挑战，特别是在低收入和中等收入国家（LMICs）。家庭全面参与家庭康复计划对于获得最佳功能结果至关重要。然而，父亲和兄弟姐妹的参与并不是最佳的，也没有得到充分的探索。本研究调查了康复专业人员对父亲和/或兄弟姐妹参与津巴布韦布拉瓦约NDD儿童家庭康复计划的看法。方法进行定性探索性研究。通过与18名康复专业人员的焦点小组讨论收集数据。对fgd进行逐字转录、编码和主题分析。结果康复专家强调父亲和兄弟姐妹在家庭康复中的关键作用；注意到父亲的情感支持和提供的经济稳定以及兄弟姐妹对社会互动和游戏治疗的贡献。参与的障碍包括文化规范和父亲的时间限制，而兄弟姐妹则面临着诸如年龄相称的理解有限和应对照顾角色的情感负担等挑战。结论康复专家认为，父亲和兄弟姐妹参与对NDD儿童成功的家庭康复很重要。要解决妨碍参与的文化和实际障碍，需要有具体情况的战略，包括对文化敏感的社区外展方案和有针对性的干预措施，以促进以家庭为中心的护理。这种努力有助于克服这些障碍，促进父亲和兄弟姐妹更多地参与，并在当地范围内提高家庭康复的效力。

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来源期刊

Child Care Health and Development 医学-小儿科

CiteScore

3.40

自引率

5.30%

发文量

136

审稿时长

4-8 weeks

期刊介绍： Child: care, health and development is an international, peer-reviewed journal which publishes papers dealing with all aspects of the health and development of children and young people. We aim to attract quantitative and qualitative research papers relevant to people from all disciplines working in child health. We welcome studies which examine the effects of social and environmental factors on health and development as well as those dealing with clinical issues, the organization of services and health policy. We particularly encourage the submission of studies related to those who are disadvantaged by physical, developmental, emotional and social problems. The journal also aims to collate important research findings and to provide a forum for discussion of global child health issues.