Making trauma ecological momentary assessment studies FAIR: review of design considerations and data procedures.

IF 4.2 2区 医学 Q1 PSYCHIATRY
Bryce Hruska, Marilyn L Piccirillo, Lonneke I M Lenferink, Maria L Pacella-LaBarbara, Ateka A Contractor, Matthew Price, Talya Greene
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引用次数: 0

Abstract

Background: Ecological momentary assessment (EMA) involves collecting data from people in their everyday lives one or more times per day over the course of days, weeks, or months. EMA has been used in the traumatic stress field to better understand how trauma-relevant symptoms, experiences, and behaviours occur under naturalistic conditions and in relation to one another. The FAIR principles specify that data should be Findable, Accessible, Interoperable, and Reusable to maximise the knowledge gained from individual research studies. However, it is unclear how EMA design decisions and data procedures might affect the implementation of these principles.Objective: We articulate key design considerations and data procedures when performing trauma EMA research and outline some challenges and recommendations for implementing the FAIR data principles in trauma EMA research.Method and Results: Using examples from existing trauma EMA studies, we discuss the decisions made when preparing a trauma EMA study; data processing and analytic procedures performed following data collection; and challenges that exist for their implementation, as well as practices that trauma EMA researchers can incorporate into their research to promote FAIR data.Conclusions: Implementing the FAIR data principles in trauma EMA research is critical to advancing scientific knowledge. Researchers should deposit their data in reputable repositories and include documentation detailing design decisions and the steps taken to clean and prepare data. Many challenges remain for the implementation of these practices including balancing privacy concerns and efforts to make trauma EMA data readily shareable.

使创伤生态瞬时评估研究公平:对设计考虑和数据程序的回顾。
背景:生态瞬时评估(EMA)涉及每天一次或多次从人们的日常生活中收集数据,持续数天、数周或数月。EMA已用于创伤应力场,以更好地了解创伤相关症状、经历和行为如何在自然条件下发生,以及彼此之间的关系。FAIR原则规定,数据应该是可查找的、可访问的、可互操作的和可重用的,以最大限度地利用从个人研究中获得的知识。然而,目前尚不清楚EMA的设计决策和数据程序如何影响这些原则的实施。目的:我们在进行创伤EMA研究时阐明了关键的设计考虑和数据程序,并概述了在创伤EMA研究中实施FAIR数据原则的一些挑战和建议。方法和结果:利用现有创伤EMA研究的例子,我们讨论准备创伤EMA研究时所做的决定;数据收集后进行的数据处理和分析程序;以及实施过程中存在的挑战,以及创伤EMA研究人员可以将其纳入研究以促进FAIR数据的实践。结论:在创伤EMA研究中实施FAIR数据原则对于推进科学知识至关重要。研究人员应该将他们的数据存储在信誉良好的存储库中,并包括详细说明设计决策和清理和准备数据所采取的步骤的文档。实施这些实践仍然面临许多挑战,包括平衡隐私问题和使创伤EMA数据易于共享的努力。
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来源期刊
CiteScore
7.60
自引率
12.00%
发文量
153
审稿时长
18 weeks
期刊介绍: The European Journal of Psychotraumatology (EJPT) is a peer-reviewed open access interdisciplinary journal owned by the European Society of Traumatic Stress Studies (ESTSS). The European Journal of Psychotraumatology (EJPT) aims to engage scholars, clinicians and researchers in the vital issues of how to understand, prevent and treat the consequences of stress and trauma, including but not limited to, posttraumatic stress disorder (PTSD), depressive disorders, substance abuse, burnout, and neurobiological or physical consequences, using the latest research or clinical experience in these areas. The journal shares ESTSS’ mission to advance and disseminate scientific knowledge about traumatic stress. Papers may address individual events, repeated or chronic (complex) trauma, large scale disasters, or violence. Being open access, the European Journal of Psychotraumatology is also evidence of ESTSS’ stand on free accessibility of research publications to a wider community via the web. The European Journal of Psychotraumatology seeks to attract contributions from academics and practitioners from diverse professional backgrounds, including, but not restricted to, those in mental health, social sciences, and health and welfare services. Contributions from outside Europe are welcome. The journal welcomes original basic and clinical research articles that consolidate and expand the theoretical and professional basis of the field of traumatic stress; Review articles including meta-analyses; short communications presenting new ideas or early-stage promising research; study protocols that describe proposed or ongoing research; case reports examining a single individual or event in a real‑life context; clinical practice papers sharing experience from the clinic; letters to the Editor debating articles already published in the Journal; inaugural Lectures; conference abstracts and book reviews. Both quantitative and qualitative research is welcome.
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