{"title":"Child self-regulation and caregiver hope: insights from families navigating Sickle cell disease and pediatric cancer.","authors":"James Rujimora, Amanda C DeDiego","doi":"10.1080/08880018.2025.2480223","DOIUrl":null,"url":null,"abstract":"<p><p>This pilot study explored caregiver experiences caring for children with hematologic and oncologic diseases. Survey data were collected from caregivers (<i>n</i> = 85) of children with hematologic and oncologic diseases while participating in therapeutic camp programming. Caregivers of children with Sickle Cell Disease perceived their child's ability to self-regulate higher than caregivers of children with cancer, which impacted aspects of caregiver hope and wellness. Implications for multi-sector collaborations are provided. In assessing caregiver hope, perception of child self-regulation was associated with higher caregiver hope and wellness, which varied by illness. Caregivers of children with SCD had higher hope scores on both the subscales and total scores compared to caregivers of children with cancer.</p>","PeriodicalId":19746,"journal":{"name":"Pediatric Hematology and Oncology","volume":" ","pages":"171-177"},"PeriodicalIF":1.2000,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Pediatric Hematology and Oncology","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1080/08880018.2025.2480223","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2025/3/20 0:00:00","PubModel":"Epub","JCR":"Q4","JCRName":"HEMATOLOGY","Score":null,"Total":0}
引用次数: 0
Abstract
This pilot study explored caregiver experiences caring for children with hematologic and oncologic diseases. Survey data were collected from caregivers (n = 85) of children with hematologic and oncologic diseases while participating in therapeutic camp programming. Caregivers of children with Sickle Cell Disease perceived their child's ability to self-regulate higher than caregivers of children with cancer, which impacted aspects of caregiver hope and wellness. Implications for multi-sector collaborations are provided. In assessing caregiver hope, perception of child self-regulation was associated with higher caregiver hope and wellness, which varied by illness. Caregivers of children with SCD had higher hope scores on both the subscales and total scores compared to caregivers of children with cancer.
期刊介绍：
PHO: Pediatric Hematology and Oncology covers all aspects of research and patient management within the area of blood disorders and malignant diseases of childhood. Our goal is to make PHO: Pediatric Hematology and Oncology the premier journal for the international community of clinicians and scientists who together aim to define optimal therapeutic strategies for children and young adults with cancer and blood disorders. The journal supports articles that address research in diverse clinical settings, exceptional case studies/series that add novel insights into pathogenesis and/or clinical care, and reviews highlighting discoveries and challenges emerging from consortia and conferences. Clinical studies as well as basic and translational research reports regarding cancer pathogenesis, genetics, molecular diagnostics, pharmacology, stem cells, molecular targeting, cellular and immune therapies and transplantation are of interest. Papers with a focus on supportive care, late effects and on related ethical, legal, psychological, social, cultural, or historical aspects of these fields are also appreciated. Reviews on important developments in the field are welcome. Articles from scientists and clinicians across the international community of Pediatric Hematology and Oncology are considered for publication. The journal is not dependent on or connected with any organization or society. All submissions undergo rigorous peer review prior to publication. Our Editorial Board includes experts in Pediatric Hematology and Oncology representing a wide range of academic and geographic diversity.
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