Community-engaged research in psychological interventions for pediatric sickle cell disease: a scoping review.

IF 2.7 3区心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL

Journal of Pediatric Psychology Pub Date : 2025-03-18 DOI:10.1093/jpepsy/jsaf008

Bridget N Murphy, Kristine Durkin, Desireé N Williford, Ariel O Blakey, Chloe Musa, Anna M Hood, Elizabeth L McQuaid, Idia Thurston, Malika Muhammad, Lori E Crosby

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引用次数: 0

Abstract

Objective: The aim of this scoping review was to identify and describe the community-engaged research (CEnR) methods used in the development and evaluation of psychological interventions for pediatric sickle cell disease (SCD).

Methods: We conducted a systematic search of three databases in April 2024 (PubMed, Scopus, and PsycINFO). The review was registered with Open Science Framework (DOI: 10.17605/OSF.IO/956AV). All titles, abstracts, and full texts for papers that appeared to meet criteria were independently reviewed by two members of the research team. Inclusion criteria were pediatric or young adult age and use of CEnR for a psychological SCD intervention. Data were extracted from articles meeting these criteria.

Results: The search yielded 235 original articles, of which eight met the inclusion criteria. These articles showed that the involvement levels of community collaborators (patients, families, and community-based organizations) varied across research phases. Notable gaps in the literature were: (1) few studies reported utilizing CEnR methods, (2) variability in language/terms used to describe CEnR methods, (3) limited demographic data about community collaborators, and (4) a lack of description of CEnR frameworks guiding intervention development and evaluation.

Conclusions: This scoping review found few studies describing the use of CEnR methods in a way that would facilitate reproducibility. Recommendations include using MeSH CEnR keywords, identifying CEnR methods and frameworks, and including specific information about community when possible (e.g., demographic information, meeting frequency, etc.).

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社区参与的儿童镰状细胞病心理干预研究：范围综述

目的：本综述的目的是确定和描述用于儿童镰状细胞病（SCD）心理干预开发和评估的社区参与研究（CEnR）方法。方法：我们于2024年4月对PubMed、Scopus和PsycINFO三个数据库进行了系统检索。该综述已在Open Science Framework注册（DOI: 10.17605/OSF.IO/956AV）。所有符合标准的论文的标题、摘要和全文都由研究小组的两名成员独立审查。纳入标准为儿童或青年年龄，并使用CEnR进行心理SCD干预。数据从符合这些标准的文章中提取。结果：检索到235篇原创文章，其中8篇符合纳入标准。这些文章表明，社区合作者（患者、家庭和社区组织）的参与程度在研究阶段各不相同。值得注意的文献缺口是：(1)很少有研究报告使用CEnR方法，(2)用于描述CEnR方法的语言/术语的可变性，(3)关于社区合作者的人口统计数据有限，以及(4)缺乏指导干预开发和评估的CEnR框架描述。结论：本范围综述发现很少有研究以一种促进可重复性的方式描述CEnR方法的使用。建议包括使用MeSH CEnR关键字，确定CEnR方法和框架，并在可能的情况下包括有关社区的具体信息（例如，人口统计信息，会议频率等）。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Pediatric Psychology PSYCHOLOGY, DEVELOPMENTAL-

CiteScore

6.00

自引率

11.10%

发文量

期刊介绍： The Journal of Pediatric Psychology is the official journal of the Society of Pediatric Psychology, Division 54 of the American Psychological Association. The Journal of Pediatric Psychology publishes articles related to theory, research, and professional practice in pediatric psychology. Pediatric psychology is an integrated field of science and practice in which the principles of psychology are applied within the context of pediatric health. The field aims to promote the health and development of children, adolescents, and their families through use of evidence-based methods.