{"title":"Latine Caregivers' Perspectives of Autism-Related Services: A Scoping Review.","authors":"Molly Hoferle, Elizabeth Roepke","doi":"10.1044/2025_AJSLP-24-00128","DOIUrl":null,"url":null,"abstract":"<p><strong>Purpose: </strong>Minoritized cultural groups in the United States experience disparities in diagnostic and intervention services for autistic children. Listening to the experiences of minoritized caregivers when accessing these services can identify areas for structural and individual improvement in cultural responsiveness.</p><p><strong>Method: </strong>We conducted a scoping review to map the experiences of Latine caregivers of autistic children in navigating autism-related services. Included studies were published between 2015 and 2024 and employed a qualitative design.</p><p><strong>Results: </strong>Twenty-six studies were included in the review. The caregivers interviewed in these studies were primarily mothers; few studies included fathers or extended family members. Services reviewed included both assessment and intervention. Factors related to assessment and intervention uptake included communication, provider support, logistics, immigration, cultural beliefs, caregivers' knowledge about autism, and social systems.</p><p><strong>Conclusions: </strong>Public education on the signs of autism and how to access services may address some of the barriers identified by caregivers in this review. Clinicians can provide education and support to empower caregivers to advocate for their children.</p>","PeriodicalId":49240,"journal":{"name":"American Journal of Speech-Language Pathology","volume":" ","pages":"1-23"},"PeriodicalIF":2.3000,"publicationDate":"2025-03-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"American Journal of Speech-Language Pathology","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1044/2025_AJSLP-24-00128","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY","Score":null,"Total":0}
引用次数: 0
Abstract
Purpose: Minoritized cultural groups in the United States experience disparities in diagnostic and intervention services for autistic children. Listening to the experiences of minoritized caregivers when accessing these services can identify areas for structural and individual improvement in cultural responsiveness.
Method: We conducted a scoping review to map the experiences of Latine caregivers of autistic children in navigating autism-related services. Included studies were published between 2015 and 2024 and employed a qualitative design.
Results: Twenty-six studies were included in the review. The caregivers interviewed in these studies were primarily mothers; few studies included fathers or extended family members. Services reviewed included both assessment and intervention. Factors related to assessment and intervention uptake included communication, provider support, logistics, immigration, cultural beliefs, caregivers' knowledge about autism, and social systems.
Conclusions: Public education on the signs of autism and how to access services may address some of the barriers identified by caregivers in this review. Clinicians can provide education and support to empower caregivers to advocate for their children.
期刊介绍：
Mission: AJSLP publishes peer-reviewed research and other scholarly articles on all aspects of clinical practice in speech-language pathology. The journal is an international outlet for clinical research pertaining to screening, detection, diagnosis, management, and outcomes of communication and swallowing disorders across the lifespan as well as the etiologies and characteristics of these disorders. Because of its clinical orientation, the journal disseminates research findings applicable to diverse aspects of clinical practice in speech-language pathology. AJSLP seeks to advance evidence-based practice by disseminating the results of new studies as well as providing a forum for critical reviews and meta-analyses of previously published work.
Scope: The broad field of speech-language pathology, including aphasia; apraxia of speech and childhood apraxia of speech; aural rehabilitation; augmentative and alternative communication; cognitive impairment; craniofacial disorders; dysarthria; fluency disorders; language disorders in children; speech sound disorders; swallowing, dysphagia, and feeding disorders; and voice disorders.
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