Anat Vass, Marc Gelkopf, Adi Ivzori-Erel, Mordechai Alperin, Hadass Goldblatt, Miri Cohen
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引用次数: 0
Abstract
Background: Research on the attitudes and support received by cancer survivors with preexisting severe mental health conditions (SMHC) from their families and oncology professionals is lacking.
Aims: To explore how individuals with SMHC perceive and experience family and oncology team attitudes and care.
Methods: Participants were 25 cancer survivors, 6 men and 18 women, aged 26-86 with preexisting SMHC. The interpretive phenomenological approach and reflexive thematic analysis were used to capture participants' lived experiences.
Results: Two themes emerged: (a) "They don't take us seriously": perceived family attitudes and support; and (b) "It was basically like ice": perceived care from oncology professionals. From these two themes, a core typology was developed, exemplifying the parallel experience and perceptions of care of family members and oncology team: negative attitudes and inadequate support reported by most participants; receiving the essential but unemotional and detached care reported by some participants; and experiencing positive attitudes and adequate support expressed by a few. In some cases, following a cancer diagnosis, family members became more positive. Many participants experienced the oncology professionals' attitudes as affected by stigma and lack of attention to their unique situation.
Conclusion: Oncology professionals should address survivors' needs for equality, dignity, humanity, and privacy in terms of care to improve their psychological well-being. In addition, family members supporting a patient with SMHC should receive sufficient information and tools to promote better care.
期刊介绍：
Psycho-Oncology is concerned with the psychological, social, behavioral, and ethical aspects of cancer. This subspeciality addresses the two major psychological dimensions of cancer: the psychological responses of patients to cancer at all stages of the disease, and that of their families and caretakers; and the psychological, behavioral and social factors that may influence the disease process. Psycho-oncology is an area of multi-disciplinary interest and has boundaries with the major specialities in oncology: the clinical disciplines (surgery, medicine, pediatrics, radiotherapy), epidemiology, immunology, endocrinology, biology, pathology, bioethics, palliative care, rehabilitation medicine, clinical trials research and decision making, as well as psychiatry and psychology.
This international journal is published twelve times a year and will consider contributions to research of clinical and theoretical interest. Topics covered are wide-ranging and relate to the psychosocial aspects of cancer and AIDS-related tumors, including: epidemiology, quality of life, palliative and supportive care, psychiatry, psychology, sociology, social work, nursing and educational issues.
Special reviews are offered from time to time. There is a section reviewing recently published books. A society news section is available for the dissemination of information relating to meetings, conferences and other society-related topics. Summary proceedings of important national and international symposia falling within the aims of the journal are presented.
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