Trust in Health Information Sources Among Patients with Systemic Lupus Erythematosus in the Social Networking Era: The TRUMP2-SLE Study.

IF 3.6 2区 医学 Q2 RHEUMATOLOGY
Takanori Ichikawa, Dai Kishida, Yasuhiro Shimojima, Nobuyuki Yajima, Nao Oguro, Ryusuke Yoshimi, Natsuki Sakurai, Chiharu Hidekawa, Ken-Ei Sada, Yoshia Miyawaki, Keigo Hayashi, Kenta Shidahara, Yuichi Ishikawa, Yoshiki Sekijima, Noriaki Kurita
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引用次数: 0

Abstract

Objective: The growing use of social networking services (SNSs) has impacted how patients with systemic lupus erythematosus (SLE) access health information, potentially influencing their interaction with healthcare providers. This study aimed to examine patients' preferences, actual use, and trust in various health information sources, along with the factors influencing the trust among patients with SLE.

Methods: A multicenter cross-sectional survey was conducted from June 2020 to August 2021, involving 510 Japanese adults with SLE. Participants reported their preferred and actual sources of health information, including SNSs, and their level of trust in these sources. Modified Poisson regression was used to analyze factors influencing trust, including internet usage and health literacy (HL) (functional, communicative, and critical).

Results: Most respondents (98.2%) expressed trust in doctors, while trust in websites/blogs (52.0%) and SNSs (26.8%) was lower. Despite this, the internet was the most frequent initial source of health information (45.3%), encompassing medical institution websites, patient blogs, X (formerly Twitter), and Instagram. Longer internet usage periods were associated with a greater trust in websites/blogs and SNSs. Higher functional HL was correlated with an increased trust in doctors but decreased trust in websites/blogs and SNSs. Higher communicative HL was linked to a greater trust in doctors, websites, and blogs.

Conclusion: Although many patients with SLE initially seek health information online, they prefer consulting rheumatologists. Internet usage duration and multidimensional HL influence trust in online sources. Healthcare providers should consider these factors when disseminating health information and engaging with patients.

社交网络时代系统性红斑狼疮患者对健康信息来源的信任:TRUMP2-SLE研究
目的:越来越多的社交网络服务(sns)的使用影响了系统性红斑狼疮(SLE)患者获取健康信息的方式,潜在地影响了他们与医疗保健提供者的互动。本研究旨在探讨SLE患者对各种健康信息源的偏好、实际使用情况和信任程度,以及影响患者信任程度的因素。方法:2020年6月至2021年8月进行了一项多中心横断面调查,涉及510名患有SLE的日本成年人。参与者报告了他们首选的和实际的健康信息来源,包括社交网站,以及他们对这些来源的信任程度。使用修正泊松回归分析影响信任的因素,包括互联网使用和健康素养(HL)(功能性、沟通性和批判性)。结果:受访者对医生的信任度最高(98.2%),对网站/博客(52.0%)和社交网站(26.8%)的信任度较低。尽管如此,互联网仍然是最常见的健康信息来源(45.3%),包括医疗机构网站、患者博客、X(以前的Twitter)和Instagram。互联网使用时间越长,对网站/博客和社交网站的信任度越高。高功能HL与对医生的信任增加相关,但与对网站/博客和社交网站的信任降低相关。较高的沟通HL与对医生、网站和博客的更大信任有关。结论:尽管许多SLE患者最初在网上寻求健康信息,但他们更倾向于咨询风湿病专家。网络使用时长和多维HL影响对网络资源的信任。医疗保健提供者在传播健康信息和与患者接触时应考虑这些因素。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Journal of Rheumatology
Journal of Rheumatology 医学-风湿病学
CiteScore
6.50
自引率
5.10%
发文量
285
审稿时长
1 months
期刊介绍: The Journal of Rheumatology is a monthly international serial edited by Earl D. Silverman. The Journal features research articles on clinical subjects from scientists working in rheumatology and related fields, as well as proceedings of meetings as supplements to regular issues. Highlights of our 41 years serving Rheumatology include: groundbreaking and provocative editorials such as "Inverting the Pyramid," renowned Pediatric Rheumatology, proceedings of OMERACT and the Canadian Rheumatology Association, Cochrane Musculoskeletal Reviews, and supplements on emerging therapies.
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