Understanding the psychosocial burden of living with advanced COPD in context of palliative care: A mixed methods study.

IF 2.5 3区心理学 Q2 PSYCHOLOGY, CLINICAL

Journal of Health Psychology Pub Date : 2025-03-13 DOI:10.1177/13591053251316504

Barbara Gonçalves, Joanne Lusher, Audrey Cund, Caroline Sime, Eileen Harkess-Murphy

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Abstract

People with advanced chronic obstructive pulmonary disease (COPD) face substantial physical and psychosocial challenges influencing their quality of life. This study explored the psychosocial aspects of people with COPD attending palliative care services. Concurrent embedded mixed methods study with 22 individuals was conducted. Data collection involved semi-structured interviews and McGill Quality of Life-Revised and Hospital Anxiety and Depression Scale questionnaires. Findings revealed a negative correlation between quality of life and psychological distress, emphasising that as disease severity increased, so did psychological distress. From interviews emerged three themes: adjustment to living with a debilitating disease, loss of identity and developing lifestyle coping strategies. To conclude, a biopsychosocial perspective to understanding the impact of COPD is essential in identifying mitigating factors which exacerbate disease burden and increase psychological distress of people living with COPD. Implementing a biopsychosocial framework can enhance care by furthering self-management, reducing psychological distress and promoting a person-centred approach.

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在姑息治疗背景下了解晚期COPD患者的社会心理负担：一项混合方法研究。

晚期慢性阻塞性肺疾病（COPD）患者面临着影响其生活质量的重大身体和社会心理挑战。本研究探讨慢性阻塞性肺病患者参加姑息治疗服务的心理社会方面。对22个个体进行了并行嵌入式混合方法研究。数据收集包括半结构化访谈和麦吉尔生活质量修订和医院焦虑和抑郁量表问卷。研究结果揭示了生活质量与心理困扰之间的负相关关系，强调随着疾病严重程度的增加，心理困扰也会增加。采访中出现了三个主题：适应患有使人衰弱的疾病的生活，丧失身份，制定生活方式应对策略。总之，从生物心理社会角度理解COPD的影响对于确定加重COPD患者疾病负担和增加其心理困扰的缓解因素至关重要。实施生物心理社会框架可以通过促进自我管理、减少心理困扰和促进以人为本的方法来加强护理。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Health Psychology PSYCHOLOGY, CLINICAL-

CiteScore

7.50

自引率

3.10%

发文量

期刊介绍： ournal of Health Psychology is an international peer-reviewed journal that aims to support and help shape research in health psychology from around the world. It provides a platform for traditional empirical analyses as well as more qualitative and/or critically oriented approaches. It also addresses the social contexts in which psychological and health processes are embedded. Studies published in this journal are required to obtain ethical approval from an Institutional Review Board. Such approval must include informed, signed consent by all research participants. Any manuscript not containing an explicit statement concerning ethical approval and informed consent will not be considered.