Development and validation of the Terminal Delirium-Related Distress Scale - Shortform.

IF 1.9 4区 医学 Q3 HEALTH POLICY & SERVICES
Megumi Uchida, Tatsuo Akechi, Tatsuya Morita, Kento Masukawa, Yoshiyuki Kizawa, Satoru Tsuneto, Mitsunori Miyashita
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引用次数: 0

Abstract

Background: We previously developed a 24-item Terminal Delirium-Related Distress Scale (TDDS) to evaluate patient and family distress due to terminal delirium. However, a scale with fewer evaluation items was needed to reduce the burden on terminally ill patients and their families. Thus, the TDDS Shortform (TDDS-SF) was developed, and the validity and reliability of the scale were evaluated.

Objectives: The aim of this study is to evaluate the validity and reliability of TDDS-SF.

Methods: Items with insufficient loading (<0.6) based on factor analysis were removed from the TDDS. Palliative care experts reviewed each item and checked the structure of the scale. Based on their feedback, we developed the TDDS-SF, a 15-item questionnaire consisting of 4 subscales, including "Care for the family," "Ability to communicate," "Psychiatric symptoms," and "Adequate information and discussion about treatment for delirium." A cross-sectional, self-completed questionnaire survey of bereaved families of cancer patients who were admitted to a hospice/palliative care unit was conducted in August 2018. The survey included the TDDS-SF, Good Death Inventory (GDI), Care Evaluation Scale (CES), and distress score in the Delirium Experience Questionnaire. The validity, including construct validity, convergent validity, discriminant validity, and internal consistency, and reliability, including the Cronbach's alpha coefficient for internal consistency, of the TDDS-SF were evaluated.

Results: The study included 366 bereaved family members. Factor analysis revealed good construct validity. Convergent validity was demonstrated based on good correlations with the CES (r = - 0.54, P < 0.001) and the GDI (r = - 0.54, P < 0.001). Discriminant validity was demonstrated by a low correlation (r = 0.23, P < 0.001) with the distress scores of bereaved families. The internal consistency was also good (Cronbach's alpha = 0.70-0.94).

Significance of results: The TDDS-SF is a valid and feasible tool for assessing irreversible terminal delirium-related distress. A study targeting patients and their families with end-of-life delirium is planned for the near future.

最终谵妄相关痛苦量表的开发和验证-简短形式。
背景:我们之前开发了一个24项的末期谵妄相关痛苦量表(TDDS)来评估患者和家属因末期谵妄造成的痛苦。然而,需要一个较少评估项目的量表,以减轻临终病人及其家属的负担。为此,编制了TDDS简易表(TDDS- sf),并对量表的效度和信度进行了评价。目的:评价TDDS-SF量表的效度和信度。结果:本研究共纳入366名丧亲家属。因子分析显示结构效度良好。基于与CES (r = - 0.54, P < 0.001)和GDI (r = - 0.54, P < 0.001)的良好相关性,证明了收敛效度。判别效度与丧亲家属的痛苦得分呈低相关(r = 0.23, P < 0.001)。内部一致性也较好(Cronbach’s alpha = 0.70-0.94)。结果的意义:TDDS-SF是评估不可逆谵妄终末期相关窘迫的有效和可行的工具。一项针对临终谵妄患者及其家属的研究计划在不久的将来进行。
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来源期刊
Palliative & Supportive Care
Palliative & Supportive Care HEALTH POLICY & SERVICES-
CiteScore
4.10
自引率
9.10%
发文量
280
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