Real needs of end-stage kidney disease patients awaiting kidney transplantation in China: A qualitative study

IF 2.9 2区医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH

Patient Education and Counseling Pub Date : 2025-03-03 DOI:10.1016/j.pec.2025.108717

Menglin Yuan , Xin Zhou , Rui Luo , Jiaao Lou , Qifa Ye , Xiaoyan Chen , Bilong Feng

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引用次数: 0

Abstract

Objective

To explore the true needs of patients awaiting kidney transplantation in China through the language used by them. We addressed the literature gap concerning this critical aspect of patient care and counselling.

Methods

We interviewed 32 individuals—22 who were on the waiting list for a kidney transplant and 10 were kidney transplant recipients. The obtained data were analysed using Colaizzi seven-step method.

Results

Four themes encompassing 86 coded statements were identified and crosschecked with each participant for validation.The waiting period needs of the participants fell into four distinct categories: emotional support, informational, medical support, and social support needs.

Conclusion

We can determine the needs of patients by interpreting their linguistic cues with a nuanced understanding.Transplant professionals must (1) understand patients’ needs from their perspective; (2) recognise the dynamic changes in their emotional support demands; and (3) determine each patient’s informational needs, their willingness to receive medical support, and the current state of their social support.

Practice Implications

Our results offer insights for transplant professionals to better support patients awaiting kidney transplantation, highlighting the need to routinely attend to their unmet emotional, informational, medical and social support needs. This will enable patients to better prepare for transplantation while anticipating the arrival of a matched kidney.

查看原文本刊更多论文

中国终末期肾病患者等待肾移植的真实需求：一项定性研究

目的通过肾移植患者使用的语言，了解肾移植患者的真实需求。我们解决了关于病人护理和咨询这一关键方面的文献差距。方法我们采访了32个人，其中22人在肾移植等待名单上，10人是肾移植接受者。采用Colaizzi七步法对所得数据进行分析。结果确定了四个主题，包含86个编码语句，并与每个参与者进行交叉检查以验证。参与者的等待期需求分为四个不同的类别：情感支持、信息支持、医疗支持和社会支持需求。结论我们可以通过细致入微地解读患者的语言线索来判断患者的需求。移植专业人员必须(1)从患者的角度理解患者的需求；(2)认识到情感支持需求的动态变化；(3)确定每个患者的信息需求，他们接受医疗支持的意愿，以及他们目前的社会支持状况。实践意义我们的结果为移植专业人员更好地支持等待肾移植的患者提供了见解，强调了常规关注他们未满足的情感、信息、医疗和社会支持需求的必要性。这将使患者能够更好地为移植做准备，同时期待匹配肾脏的到来。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Patient Education and Counseling 医学-公共卫生、环境卫生与职业卫生

CiteScore

5.60

自引率

11.40%

发文量

384

审稿时长

46 days

期刊介绍： Patient Education and Counseling is an interdisciplinary, international journal for patient education and health promotion researchers, managers and clinicians. The journal seeks to explore and elucidate the educational, counseling and communication models in health care. Its aim is to provide a forum for fundamental as well as applied research, and to promote the study of organizational issues involved with the delivery of patient education, counseling, health promotion services and training models in improving communication between providers and patients.