Development and Validation of a Questionnaire to Measure Feeding Challenges and Nutritional Problems Associated With Long-Term Enteral Nutrition Among Children With Disabilities.
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引用次数: 0
Abstract
Background: Children with disabilities receiving long-term enteral nutrition (EN) frequently struggle with feeding issues. This study aims to develop and validate a questionnaire to assess tube feeding challenges and nutritional problems among this group of children.
Methods: In this survey-based study, data was collected via an online survey of mothers or caregivers of children with disabilities receiving long-term EN. The questionnaire was prepared following a literature analysis of nasogastric, gastrostomy and jejunostomy-related complications in children. The validation of the tool was conducted with three experts in the field, followed by its translation into Arabic. It was then pilot-tested on six mothers of children with disabilities who receive long-term EN. The reliability of the questionnaire was assessed using Cronbach's-alpha coefficient and measurement of test-retest inter-rater reliability.
Results: Twenty-four children were included in this study; their median age was 4.7 years. The value of Cronbach's-alpha (α = 0.742) suggested good reliability of the tool items among the study sample. The test-retest reliability assessed by correlation coefficients showed a strong correlation for most items; the r-value of the overall tool was 0.922, P < 0.001.
Conclusion: Strong test-retest reliability was demonstrated by the developed EN feeding problem questionnaire. Suggesting that the questionnaire is reliable and valid for utilisation in children with disabilities.
期刊介绍：
Risk Management and Healthcare Policy is an international, peer-reviewed, open access journal focusing on all aspects of public health, policy and preventative measures to promote good health and improve morbidity and mortality in the population. Specific topics covered in the journal include:
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Risk Management and Healthcare Policy focuses on human interventional and observational research. The journal welcomes submitted papers covering original research, clinical and epidemiological studies, reviews and evaluations, guidelines, expert opinion and commentary, and extended reports. Case reports will only be considered if they make a valuable and original contribution to the literature. The journal does not accept study protocols, animal-based or cell line-based studies.
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