Lessons Learned From 2 Research Studies Enrolling Underrepresented Patients With Ventricular Assist Devices and Their Family Caregivers

IF 6.7 2区 医学 Q1 CARDIAC & CARDIOVASCULAR SYSTEMS
AVERY C. BECHTHOLD PhD, BSN, RN , MARTHA ABSHIRESAYLOR PhD, RN , RACHEL D. WELLS PhD, RN
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引用次数: 0

Abstract

Given the continued challenges of and barriers to recruiting and retaining underrepresented groups in cardiovascular studies, this study aimed to describe successful recruitment strategies used by 2 related ventricular assist device (VAD) studies. The 2 exemplar studies focused on understanding how adults with a VAD and their family caregivers discuss, reflect upon and act on their personal values. To recruit a more representative and diverse sample reflective of the substantial Black population receiving care at the local academic hospital outpatient clinic, we developed multipronged recruitment strategies for a convergent mixed-methods study (Study 1) and a sequential explanatory mixed-methods study (Study 2). Two underlying principles guided recruitment strategies: (1) clinician-scientist collaboration, and (2) personalized participant interactions. This article reflects on lessons learned by an early career investigator and her mentors from 2 studies, which will support ongoing inclusive recruitment in future projects.
从两项纳入未被充分代表的心室辅助装置患者及其家庭护理人员的研究中获得的经验教训。
考虑到在心血管研究中招募和保留代表性不足的人群的持续挑战和障碍,本文旨在描述两项相关心室辅助装置(VAD)研究中使用的成功招募策略。这两项范例研究的重点是了解患有VAD的成年人和他们的家庭照顾者如何讨论、反思和采取个人价值观。为了招募更具代表性和多样性的样本,反映在当地学术医院门诊接受护理的大量黑人人口,我们制定了多管齐下的招募策略,用于融合混合方法研究(研究1)和顺序解释混合方法研究(研究2)。指导招募策略的两个基本原则:1)临床医生-科学家合作,2)个性化参与者互动。本文反映了一位早期职业调查员和她的导师从两项研究中学到的经验教训,这些经验教训将支持未来项目中正在进行的包容性招聘。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Journal of Cardiac Failure
Journal of Cardiac Failure 医学-心血管系统
CiteScore
7.80
自引率
8.30%
发文量
653
审稿时长
21 days
期刊介绍: Journal of Cardiac Failure publishes original, peer-reviewed communications of scientific excellence and review articles on clinical research, basic human studies, animal studies, and bench research with potential clinical applications to heart failure - pathogenesis, etiology, epidemiology, pathophysiological mechanisms, assessment, prevention, and treatment.
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