Lessons Learned from Two Research Studies Enrolling Underrepresented Patients with Ventricular Assist Devices and their Family Caregivers.

IF 6.7 2区 医学 Q1 CARDIAC & CARDIOVASCULAR SYSTEMS
Avery C Bechthold, Martha Abshire Saylor, Rachel D Wells
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引用次数: 0

Abstract

Given the continued challenges and barriers of recruiting and retaining underrepresented groups in cardiovascular studies, this paper aims to describe successful recruitment strategies used by two related ventricular assist device (VAD) studies. The two exemplar studies focused on understanding how adults with a VAD and their family caregivers discuss, reflect upon, and act on their personal values. To recruit a more representative and diverse sample reflective of the substantial Black population receiving care at the local, academic hospital outpatient clinic, we developed multipronged recruitment strategies for a convergent mixed methods study (Study 1) and sequential explanatory mixed methods study (Study 2). Two underlying principles guided recruitment strategies: 1) clinician-scientist collaboration, and 2) personalized participant interactions. This article reflects on lessons learned by an early career investigator and her mentors from two studies which will support ongoing inclusive recruitment in future projects.

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来源期刊
Journal of Cardiac Failure
Journal of Cardiac Failure 医学-心血管系统
CiteScore
7.80
自引率
8.30%
发文量
653
审稿时长
21 days
期刊介绍: Journal of Cardiac Failure publishes original, peer-reviewed communications of scientific excellence and review articles on clinical research, basic human studies, animal studies, and bench research with potential clinical applications to heart failure - pathogenesis, etiology, epidemiology, pathophysiological mechanisms, assessment, prevention, and treatment.
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