Relationship between caregiver burden and family resilience among Chinese parents of children with autism spectrum disorder: The mediating role of social support and positive cognition

IF 2.1 4区医学 Q2 NURSING

Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2025-03-05 DOI:10.1016/j.pedn.2025.02.020

Xuewei Chen BS, RN, Jingrui Tao BS, RN, Yao Zhang BS, RN, Qiongying Xu BS, RN, Chaoqun Dong Ph.D. RN

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引用次数: 0

Abstract

Purpose

This study was designed to assess the impact of caregiver burden on family resilience and explore the potential mediating role of social support and positive cognition in this association among Chinese families of children with autism spectrum disorder (ASD).

Design and methods

A total of 254 parents of children with ASD were recruited using convenience sampling from five ASD rehabilitation institutions in Wenzhou and Ningbo, Zhejiang Province from June to August 2021. The Zarit Burden Scale, Social Support Rate Scale, Illness Cognition Questionnaire–Parent Version, and Family Resilience Assessment Scale were employed to investigate the mediating mechanisms of social support and illness cognition between caregiver burden and family resilience. Structural equation models were conducted to evaluate the relationships among the variables.

Results

This study revealed that caregiver burden negatively associated with family resilience, with social support partially mediating this relationship (accounting for 17.86 % of the total effect), and both factors being indirectly linked through social support and positive cognition (accounting for 3.76 % of the total effect).

Conclusions

The findings emphasize the need for interventions aimed at enhancing social support and positive cognition to alleviate the negative effects of caregiver burden on family resilience among parents of children with ASD.

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来源期刊

Journal of Pediatric Nursing-Nursing Care of Children & Families NURSING-PEDIATRICS

CiteScore

3.70

自引率

8.30%

发文量

291

审稿时长

65 days

期刊介绍： Official Journal of the Society of Pediatric Nurses and the Pediatric Endocrinology Nursing Society (PENS) The Journal of Pediatric Nursing: Nursing Care of Children and Families (JPN) is interested in publishing evidence-based practice, quality improvement, theory, and research papers on a variety of topics from US and international authors. JPN is the official journal of the Society of Pediatric Nurses and the Pediatric Endocrinology Nursing Society. Cecily L. Betz, PhD, RN, FAAN is the Founder and Editor in Chief. Journal content covers the life span from birth to adolescence. Submissions should be pertinent to the nursing care needs of healthy and ill infants, children, and adolescents, addressing their biopsychosocial needs. JPN also features the following regular columns for which authors may submit brief papers: Hot Topics and Technology.