Implementation and evaluation of a patient action plan for patients with atopic dermatitis

K. Thormann, L. Lupe, S. Radonjic-Hoesli, C. von Dach, D. Simon
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Abstract

Background

Management and treatment of atopic dermatitis (AD) are complex and therefore bear the risk of therapeutic failure. Individualised patient action plans for patients and for caregivers have been shown to improve AD management, eczema monitoring and therapy adherence. Little is known about the use of patient action plans in the adult setting.

Objectives

This project aimed at implementing a patient action plan to improve eczema management and evaluating its effects on disease severity and patient-related outcomes.

Methods

This quality improvement project had a pretest–posttest design and evaluated AD severity and patient-related outcomes after implementing a patient action plan. A convenience sample of 20 adult patients with AD was included. Socio-demographic, diagnostic and clinical variables were collected from the electronic health records. Trained staff assessed AD severity using SCORing Atopic Dermatitis (SCORAD) and person-centred dermatology self-care index (PeDeSI-G) pre as well as 1-month postintervention. Patients completed dermatology life quality index (DLQI) and patient benefit index (PBI). For comparison of SCORAD, DLQI, PeDeSI-G, paired t-test was applied. PBI was presented using descriptive statistics.

Results

Upon intervention, a significant decrease of disease severity (p < 0.0001), in parallel with a significant decrease of DLQI (p < 0.001) and PeDeSI-G (p < 0.0001) was observed. A PBI ≥ 1 was reached in 95% of participants (mean 2.73; SD 0.9).

Conclusions

Our findings confirm the importance of providing patient action plans to AD patients to achieve best treatment results. Based on our experience, we plan to modify the action plan by including both topical and systemic therapies, and to translate it into several languages.

Abstract Image

背景特应性皮炎(AD)的管理和治疗非常复杂,因此存在治疗失败的风险。为患者和护理人员制定的个性化患者行动计划已被证明可改善特应性皮炎的管理、湿疹监测和治疗依从性。目前,人们对患者行动计划在成人环境中的应用知之甚少。 目标 该项目旨在通过实施患者行动计划来改善湿疹管理,并评估其对疾病严重程度和患者相关结果的影响。 方法 该质量改进项目采用前测-后测设计,对实施患者行动计划后的湿疹严重程度和患者相关结果进行评估。该项目对 20 名成年注意力缺失症患者进行了抽样调查。从电子健康记录中收集了社会人口学、诊断和临床变量。训练有素的工作人员在干预前和干预后一个月使用特应性皮炎SCORing(SCORAD)和以人为本的皮肤病自我护理指数(PeDeSI-G)评估注意力缺失症的严重程度。患者填写皮肤科生活质量指数(DLQI)和患者受益指数(PBI)。SCORAD、DLQI和PeDeSI-G的比较采用配对t检验。PBI 采用描述性统计。 结果 干预后,疾病严重程度明显降低(p < 0.0001),同时 DLQI(p < 0.001)和 PeDeSI-G (p < 0.0001)也明显降低。95% 的参与者 PBI ≥ 1(平均 2.73;标准差 0.9)。 结论 我们的研究结果证实了为 AD 患者提供患者行动计划以达到最佳治疗效果的重要性。根据我们的经验,我们计划修改行动计划,将局部和全身疗法都包括在内,并将其翻译成多种语言。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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