Development of a Core Outcome Set for the Audit of Cleft Care in Malaysia.

IF 1.1 4区医学 Q2 Dentistry

Cleft Palate-Craniofacial Journal Pub Date : 2025-02-27 DOI:10.1177/10556656241285808

Al Imran Shahrul, Nik Mukhriz Nik Mustapha, Mas Suryalis Ahmad, O P Kharbanda, Aida Nur Ashikin Abd Rahman

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引用次数: 0

Abstract

Objective: To develop a core outcome set for the audit of cleft care in Malaysia.

Design: To generate a core outcome set for patients dealing with cleft lip and/or palate within Malaysia, a combination of scholarly research reviews and consensus-driven methodologies, such as questionnaires and collaborative discussions, were utilized to guide the development process.

Setting: Multicenter study. Feedback obtains via face-to-face and online interaction.

Participants: Cleft Clinicians, Cleft Lip and Palate Association of Malaysia members, hospitals, and government bodies personal.

Main outcome measure: Participants provide their feedback and suggestions of each outcome measure.

Results: Through a deliberative process, agreement was established on a uniform set of outcome measures selected from an initial list of 108 potential outcomes. These agreed-upon measures were classified into 12 primary domains: demographic, cleft detail, pregnancy, general pediatric, otolaryngology/audiology, speech, surgical, orthodontics, pediatric dentistry, radiology, photographs, and study models.

Conclusion: A specialized core outcome set has been successfully developed for patients with cleft lip and/or palate, aiming to facilitate its implementation within the Malaysian healthcare system.

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发展的核心成果集的审计唇裂护理在马来西亚。

目的：制定一个核心结果集的审计唇裂护理在马来西亚。设计：为了为马来西亚唇裂和/或腭裂患者提供一个核心结果集，我们结合了学术研究综述和共识驱动的方法，如问卷调查和协作讨论，来指导开发过程。设置：多中心研究。通过面对面和在线互动获得反馈。参与者：唇腭裂临床医生，马来西亚唇腭裂协会会员，医院和政府机构个人。主要结果测量：参与者提供他们对每个结果测量的反馈和建议。结果：通过审议过程，就从108个潜在结果的初步清单中选出的一套统一的结果措施达成了协议。这些商定的措施被分为12个主要领域：人口统计学、唇裂细节、妊娠、普通儿科、耳鼻喉/听力学、言语、外科、正畸、儿科牙科、放射学、照片和研究模型。结论：一套专门的核心结果集已经成功地为唇裂和/或腭裂患者开发，旨在促进其在马来西亚医疗保健系统中的实施。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Cleft Palate-Craniofacial Journal DENTISTRY, ORAL SURGERY & MEDICINE-SURGERY

CiteScore

2.20

自引率

36.40%

发文量

审稿时长

4-8 weeks

期刊介绍： The Cleft Palate-Craniofacial Journal (CPCJ) is the premiere peer-reviewed, interdisciplinary, international journal dedicated to current research on etiology, prevention, diagnosis, and treatment in all areas pertaining to craniofacial anomalies. CPCJ reports on basic science and clinical research aimed at better elucidating the pathogenesis, pathology, and optimal methods of treatment of cleft and craniofacial anomalies. The journal strives to foster communication and cooperation among professionals from all specialties.