Having a heart-to-heart: Parents' experiences preparing their child for a cardiac procedure.

Abstract

Cardiac procedures can be overwhelming for children and parents, with a lack of literature surrounding how healthcare professionals can assist parents in preparing young children for such procedures. This exploratory descriptive qualitative study sought to understand experiences of parents preparing and supporting their child with congenital heart disease, for an upcoming cardiac procedure. Parents of children, aged between three and eight years old, who had undergone a cardiac procedure at a tertiary paediatric hospital in Australia were invited to participate in an interview. Seven parents were interviewed, with recordings transcribed and analysed using reflexive thematic analysis. Four major themes identified were (1) evolving information needs; (2) anticipating anxiety; (3) honesty when delivering information; and (4) equipping parents with resources. Findings from this study emphasised that support for children prior to cardiac procedures must include empowering parents, as they know their child best. A key component of procedural preparation is helping parents navigate how to translate procedural information into explanations which are relatable and appropriate for their child. The development of interactive, relatable resources would allow parents to continue their child's preparation beyond the preadmission visit.