{"title":"Recent trends in National Institutes of Health funding for cerebral palsy lifespan research.","authors":"Simon G Keep, Donna Omichinski, Mark D Peterson","doi":"10.1111/dmcn.16281","DOIUrl":null,"url":null,"abstract":"<p><strong>Aim: </strong>To determine the landscape of recent National Institutes of Health (NIH) funding for cerebral palsy (CP)-related research regarding lifespan issues.</p><p><strong>Method: </strong>This longitudinal study examined NIH funding for CP-related research between 2014 and 2023, particularly focusing on lifespan issues. We searched NIH databases Research Portfolio Online Reporting Tools Expenditures and Results, and Research, Condition, and Disease Categorization for keyword 'cerebral palsy'. We classified grants by type and area of study.</p><p><strong>Results: </strong>From 2014 to 2023, CP NIH funding averaged US$22.7 million per year, not adjusted for inflation, for a total cost of US$226.7 million. This supported research pertaining to treatments/early interventions (51.0% of total), causes/mechanisms/risk factors (22.6%), and screening/early detection/diagnosis (9.6%). Infrastructure/surveillance funding was 6.6%, whereas services/implementation research received 7.9%. Funding for lifespan/adulthood CP research represented only 2.3% of funding. Annual NIH funding for CP increased steadily over the period from US$22.0 million in 2014 to US$24.8 million in 2023; however, funding focused on lifespan studies has been relatively unchanged, never rising above US$0.91 million.</p><p><strong>Interpretation: </strong>While NIH funding for CP studies increased over the study period, lifespan studies have not. Additional research funds are needed to improve the clinical care and understanding of lifespan needs faced by individuals living with CP.</p>","PeriodicalId":50587,"journal":{"name":"Developmental Medicine and Child Neurology","volume":" ","pages":""},"PeriodicalIF":3.8000,"publicationDate":"2025-02-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Developmental Medicine and Child Neurology","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1111/dmcn.16281","RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"CLINICAL NEUROLOGY","Score":null,"Total":0}
引用次数: 0
Abstract
Aim: To determine the landscape of recent National Institutes of Health (NIH) funding for cerebral palsy (CP)-related research regarding lifespan issues.
Method: This longitudinal study examined NIH funding for CP-related research between 2014 and 2023, particularly focusing on lifespan issues. We searched NIH databases Research Portfolio Online Reporting Tools Expenditures and Results, and Research, Condition, and Disease Categorization for keyword 'cerebral palsy'. We classified grants by type and area of study.
Results: From 2014 to 2023, CP NIH funding averaged US$22.7 million per year, not adjusted for inflation, for a total cost of US$226.7 million. This supported research pertaining to treatments/early interventions (51.0% of total), causes/mechanisms/risk factors (22.6%), and screening/early detection/diagnosis (9.6%). Infrastructure/surveillance funding was 6.6%, whereas services/implementation research received 7.9%. Funding for lifespan/adulthood CP research represented only 2.3% of funding. Annual NIH funding for CP increased steadily over the period from US$22.0 million in 2014 to US$24.8 million in 2023; however, funding focused on lifespan studies has been relatively unchanged, never rising above US$0.91 million.
Interpretation: While NIH funding for CP studies increased over the study period, lifespan studies have not. Additional research funds are needed to improve the clinical care and understanding of lifespan needs faced by individuals living with CP.
期刊介绍:
Wiley-Blackwell is pleased to publish Developmental Medicine & Child Neurology (DMCN), a Mac Keith Press publication and official journal of the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) and the British Paediatric Neurology Association (BPNA).
For over 50 years, DMCN has defined the field of paediatric neurology and neurodisability and is one of the world’s leading journals in the whole field of paediatrics. DMCN disseminates a range of information worldwide to improve the lives of disabled children and their families. The high quality of published articles is maintained by expert review, including independent statistical assessment, before acceptance.