Recent trends in National Institutes of Health funding for cerebral palsy lifespan research.

IF 3.8 2区 医学 Q1 CLINICAL NEUROLOGY
Simon G Keep, Donna Omichinski, Mark D Peterson
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引用次数: 0

Abstract

Aim: To determine the landscape of recent National Institutes of Health (NIH) funding for cerebral palsy (CP)-related research regarding lifespan issues.

Method: This longitudinal study examined NIH funding for CP-related research between 2014 and 2023, particularly focusing on lifespan issues. We searched NIH databases Research Portfolio Online Reporting Tools Expenditures and Results, and Research, Condition, and Disease Categorization for keyword 'cerebral palsy'. We classified grants by type and area of study.

Results: From 2014 to 2023, CP NIH funding averaged US$22.7 million per year, not adjusted for inflation, for a total cost of US$226.7 million. This supported research pertaining to treatments/early interventions (51.0% of total), causes/mechanisms/risk factors (22.6%), and screening/early detection/diagnosis (9.6%). Infrastructure/surveillance funding was 6.6%, whereas services/implementation research received 7.9%. Funding for lifespan/adulthood CP research represented only 2.3% of funding. Annual NIH funding for CP increased steadily over the period from US$22.0 million in 2014 to US$24.8 million in 2023; however, funding focused on lifespan studies has been relatively unchanged, never rising above US$0.91 million.

Interpretation: While NIH funding for CP studies increased over the study period, lifespan studies have not. Additional research funds are needed to improve the clinical care and understanding of lifespan needs faced by individuals living with CP.

美国国立卫生研究院资助脑瘫寿命研究的最新趋势。
目的:确定最近美国国立卫生研究院(NIH)对脑瘫(CP)相关研究的资助情况。方法:这项纵向研究调查了2014年至2023年间NIH对cp相关研究的资助,特别是关注寿命问题。我们在NIH数据库中检索了关键词“脑瘫”的研究组合在线报告工具支出和结果以及研究、状况和疾病分类。我们按类型和研究领域对拨款进行分类。结果:从2014年到2023年,未经通货膨胀调整,CP NIH平均每年资助2270万美元,总成本为2.267亿美元。该研究支持有关治疗/早期干预(占总数的51.0%),原因/机制/危险因素(22.6%)和筛查/早期发现/诊断(9.6%)的研究。基础设施/监测经费占6.6%,而服务/实施研究经费占7.9%。终身/成年CP研究的资金仅占资金的2.3%。NIH每年对CP的资助从2014年的2200万美元稳步增加到2023年的2480万美元;然而,专注于寿命研究的资金一直相对不变,从未超过91万美元。解释:虽然NIH对CP研究的资助在研究期间有所增加,但寿命研究却没有。需要额外的研究资金来改善临床护理和了解CP患者面临的寿命需求。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
CiteScore
7.80
自引率
13.20%
发文量
338
审稿时长
3-6 weeks
期刊介绍: Wiley-Blackwell is pleased to publish Developmental Medicine & Child Neurology (DMCN), a Mac Keith Press publication and official journal of the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) and the British Paediatric Neurology Association (BPNA). For over 50 years, DMCN has defined the field of paediatric neurology and neurodisability and is one of the world’s leading journals in the whole field of paediatrics. DMCN disseminates a range of information worldwide to improve the lives of disabled children and their families. The high quality of published articles is maintained by expert review, including independent statistical assessment, before acceptance.
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