'I want to know that it's worth me attending': A qualitative analysis of consumers' decisions not to attend their chronic pain group education session.

Abstract

Background: Many pain clinics encourage/mandate attendance at introductory group pain education sessions. Despite high non-attendance rates, no studies have examined consumer-reported reasons for non-attendance. Purpose: The aim of this study was to better understand why consumers fail to attend their pain education session. Research Design and Study Sample: We attempted to contact all non-attendees of our South Australian tertiary pain unit's group pain education sessions from February-August 2020. Of the 23 we could reach, 10 completed semi-structured telephone interviews. Data Analysis: Audio-recordings were transcribed verbatim and subject to thematic content analysis. Results: 'Attendance barriers' themes highlighted the complex lives of non-attendees. Pain prevented them from leaving their house, deterred them from travel to, and sitting through, the entire session. Competing responsibilities including other medical appointments and comorbidities were commonly mentioned. Most explicitly stated their dislike for the group format. Other factors included fear of the unknown nature of the session, not wanting education, and wanting a doctor's appointment. Several participants expressed a distrust of medical professionals, and perceived the benefits of attending as not exceeding the perceived time, money and pain associated. Conclusions: Pain management may not be individuals' main priority and attendance may only occur when other personal issues are addressed. Significant non-attendance rates may be unavoidable. Providing additional session detail may reduce misconceptions and allay concerns. Educating referring GPs may assist consumers to make an informed decision regarding attending. Online sessions may address various barriers and prove a more cost-effective alternative.

Perspective: This article examines consumers' reasons for non-attendance at pre-clinic group education programs. Findings could be used by Pain Units to shape patient and GP communications regarding such programs, as well as program content and format, to improve patient acceptance and program attendance, and potentially engagement with self-management.