Automated Digital Safety Planning Interventions for Young Adults: Qualitative Study Using Online Co-design Methods.

IF 2 Q3 HEALTH CARE SCIENCES & SERVICES
Jonah Meyerhoff, Sarah A Popowski, Tanvi Lakhtakia, Emily Tack, Rachel Kornfield, Kaylee P Kruzan, Charles J Krause, Theresa Nguyen, Kevin Rushton, Anthony R Pisani, Madhu Reddy, Kimberly A Van Orden, David C Mohr
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引用次数: 0

Abstract

Background: Young adults in the United States are experiencing accelerating rates of suicidal thoughts and behaviors but have the lowest rates of formal mental health care. Digital suicide prevention interventions have the potential to increase access to suicide prevention care by circumventing attitudinal and structural barriers that prevent access to formal mental health care. These tools should be designed in collaboration with young adults who have lived experience of suicide-related thoughts and behaviors to optimize acceptability and use.

Objective: This study aims to identify the needs, preferences, and features for an automated SMS text messaging-based safety planning service to support the self-management of suicide-related thoughts and behaviors among young adults.

Methods: We enrolled 30 young adults (age 18-24 years) with recent suicide-related thoughts and behaviors to participate in asynchronous remote focus groups via an online private forum. Participants responded to researcher-posted prompts and were encouraged to reply to fellow participants-creating a threaded digital conversation. Researcher-posted prompts centered on participants' experiences with suicide-related thought and behavior-related coping, safety planning, and technologies for suicide-related thought and behavior self-management. Focus group transcripts were analyzed using thematic analysis to extract key needs, preferences, and feature considerations for an automated SMS text messaging-based safety planning tool.

Results: Young adult participants indicated that an automated digital SMS text message-based safety planning intervention must meet their needs in 2 ways. First, by empowering them to manage their symptoms on their own and support acquiring and using effective coping skills. Second, by leveraging young adults' existing social connections. Young adult participants also shared 3 key technological needs of an automated intervention: (1) transparency about how the intervention functions, the kinds of actions it does and does not take, the limits of confidentiality, and the role of human oversight within the program; (2) strong privacy practices-data security around how content within the intervention and how private data created by the intervention would be maintained and used was extremely important to young adult participants given the sensitive nature of suicide-related data; and (3) usability, convenience, and accessibility were particularly important to participants-this includes having an approachable and engaging message tone, customizable message delivery options (eg, length, number, content focus), and straightforward menu navigation. Young adult participants also highlighted specific features that could support core coping skill acquisition (eg, self-tracking, coping skill idea generation, reminders).

Conclusions: Engaging young adults in the design process of a digital suicide prevention tool revealed critical considerations that must be addressed if the tool is to effectively expand access to evidence-based care to reach young people at risk for suicide-related thoughts and behaviors. Specifically, automated digital safety planning interventions must support building skillfulness to cope effectively with suicidal crises, deepening interpersonal connections, system transparency, and data privacy.

背景:在美国,年轻成年人自杀想法和行为的发生率正在加速上升,但他们接受正规心理健康护理的比例却最低。数字化自杀预防干预措施有可能通过规避阻碍获得正规心理健康护理的态度和结构性障碍,增加获得自杀预防护理的机会。在设计这些工具时,应与有自杀相关想法和行为经历的年轻人合作,以优化其可接受性和使用率:本研究旨在确定基于自动短信的安全规划服务的需求、偏好和特点,以支持年轻人对自杀相关想法和行为进行自我管理:我们招募了 30 名近期有自杀相关想法和行为的年轻人(18-24 岁),让他们通过在线私人论坛参加异步远程焦点小组。参与者对研究人员发布的提示做出回应,并被鼓励回复其他参与者,从而形成线程式数字对话。研究人员发布的提示主要围绕参与者在自杀相关思想和行为应对、安全规划以及自杀相关思想和行为自我管理技术方面的经验。研究人员采用主题分析法对焦点小组讨论记录进行了分析,以提取基于自动短信的安全规划工具的主要需求、偏好和功能考虑因素:结果:青壮年参与者表示,基于自动数字短信的安全规划干预措施必须在两个方面满足他们的需求。首先,让他们有能力自己处理症状,并支持他们获得和使用有效的应对技能。其次,利用年轻人现有的社会关系。青壮年参与者还分享了自动化干预的 3 个关键技术需求:(1) 干预功能的透明度、干预行动的种类、保密限制以及程序中人工监督的作用;(2) 强大的隐私保护措施--鉴于自杀相关数据的敏感性,干预内容的数据安全以及干预所产生的私人数据的维护和使用,对青壮年参与者来说极为重要;(3) 可用性、便利性和可访问性对参与者尤为重要--这包括平易近人、引人入胜的信息语调,可定制的信息传递选项(例如,长度、数量、内容重点),以及直观的菜单导航。青壮年参与者还强调了可以支持核心应对技能学习的具体功能(例如,自我跟踪、应对技能想法生成、提醒):让青少年参与数字自杀预防工具的设计过程揭示了一些重要的考虑因素,如果该工具要有效地扩大循证护理的使用范围,以帮助有自杀相关想法和行为风险的青少年,就必须解决这些问题。具体来说,自动化数字安全规划干预措施必须支持培养有效应对自杀危机的技能、加深人际联系、系统透明度和数据隐私。
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来源期刊
JMIR Formative Research
JMIR Formative Research Medicine-Medicine (miscellaneous)
CiteScore
2.70
自引率
9.10%
发文量
579
审稿时长
12 weeks
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