{"title":"Healthcare lived experiences of African, Caribbean, and Black individuals in Alberta living with HIV/AIDS: A phenomenological study.","authors":"Joseph Osuji, Alyssa Domingo, Funke Olokude","doi":"10.17269/s41997-024-00993-4","DOIUrl":null,"url":null,"abstract":"<p><strong>Objective: </strong>This study explores the lived experiences of African, Caribbean, and Black (ACB) individuals in Alberta living with HIV/AIDS and the issues they encounter when accessing services.</p><p><strong>Methods: </strong>Interpretive phenomenological analysis (IPA) provided the underlying philosophy, data collection, and analysis methods. Participants self-identified after responding to recruitment posters posted at HIV/AIDS-supporting agencies in Alberta and on related social media pages. A total of 22 research informants were recruited and interviewed. Texts resulting from audio-taped interviews constituted data for analysis.</p><p><strong>Results: </strong>Data analysis yielded four broad themes, with stigma, discrimination, and racism serving as common threads in the lived experiences of ACB individuals accessing HIV/AIDS services in Alberta. These themes were organized into four categories: (a) health literacy and empowerment, (b) non-belonging and invisibility, (c) barriers to care and adherence, and (d) psychosocial life impacts.</p><p><strong>Conclusion: </strong>The findings suggest the need for greater sensitivity and knowledge among healthcare and service providers, such as providing culturally appropriate support services for the ACB population living with HIV/AIDS. Moreover, a comprehensive community awareness program is necessary to address discrimination, anti-Black racism, and stigma. Expanded efforts to recognize and mitigate barriers to care, such as poverty, accessibility, and settlement issues, are also critical. This perspective advocates for intentional policy and practice changes that focus on diversity, equity, and inclusivity in protocols governing how ACB individuals access HIV/AIDS care in Alberta.</p>","PeriodicalId":51407,"journal":{"name":"Canadian Journal of Public Health-Revue Canadienne De Sante Publique","volume":" ","pages":""},"PeriodicalIF":2.9000,"publicationDate":"2025-02-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Canadian Journal of Public Health-Revue Canadienne De Sante Publique","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.17269/s41997-024-00993-4","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH","Score":null,"Total":0}
引用次数: 0
Abstract
Objective: This study explores the lived experiences of African, Caribbean, and Black (ACB) individuals in Alberta living with HIV/AIDS and the issues they encounter when accessing services.
Methods: Interpretive phenomenological analysis (IPA) provided the underlying philosophy, data collection, and analysis methods. Participants self-identified after responding to recruitment posters posted at HIV/AIDS-supporting agencies in Alberta and on related social media pages. A total of 22 research informants were recruited and interviewed. Texts resulting from audio-taped interviews constituted data for analysis.
Results: Data analysis yielded four broad themes, with stigma, discrimination, and racism serving as common threads in the lived experiences of ACB individuals accessing HIV/AIDS services in Alberta. These themes were organized into four categories: (a) health literacy and empowerment, (b) non-belonging and invisibility, (c) barriers to care and adherence, and (d) psychosocial life impacts.
Conclusion: The findings suggest the need for greater sensitivity and knowledge among healthcare and service providers, such as providing culturally appropriate support services for the ACB population living with HIV/AIDS. Moreover, a comprehensive community awareness program is necessary to address discrimination, anti-Black racism, and stigma. Expanded efforts to recognize and mitigate barriers to care, such as poverty, accessibility, and settlement issues, are also critical. This perspective advocates for intentional policy and practice changes that focus on diversity, equity, and inclusivity in protocols governing how ACB individuals access HIV/AIDS care in Alberta.
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The Canadian Journal of Public Health is dedicated to fostering excellence in public health research, scholarship, policy and practice. The aim of the Journal is to advance public health research and practice in Canada and around the world, thus contributing to the improvement of the health of populations and the reduction of health inequalities.
CJPH publishes original research and scholarly articles submitted in either English or French that are relevant to population and public health.
CJPH is an independent, peer-reviewed journal owned by the Canadian Public Health Association and published by Springer.
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La RCSP publie des articles savants et des travaux inédits, soumis en anglais ou en français, qui sont d’intérêt pour la santé publique et des populations.
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