L R Knudsen, J Knitza, F Mühlensiepen, A Hueber, J Henes, M Ndosi, A de Thurah
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引用次数: 0
Abstract
Objective: Patient education is a cornerstone of rheumatology care, enabling patients to effectively and safely manage their condition. Standardized patient knowledge assessments are essential for benchmarking care quality and tailoring education to individual needs. This study aimed to develop and validate Danish and German versions of a patient knowledge questionnaire (PKQ) for rheumatoid arthritis (RA).
Method: Danish and German adaptations from the English version involved a forward-and-backward translation process. Face validity was assessed with patients with RA in Denmark and Germany. Subsequently, the generated PKQ-RA-11 versions were tested in Danish and German RA patients.
Results: The face-validity assessment included 20 patients (10 Danish, 10 German). Adjustments in the Danish version included rephrasing options and aligning with digital patient education content. The German version followed the refined Danish version with necessary cultural adjustments. PKQ-RA-11 comprises 11 multiple-choice questions with a scoring system to minimize guessing. The final PKQ-RA-11 was completed by 175 Danish and 174 German patients; mean completion time was 7.5 and 7.4 minutes, respectively. Mean ± sd baseline PKQ-RA-11 scores were 7.9 ± 1.6 for Danish and 6.2 ± 2.5 for German participants. Longitudinal data from Denmark indicated an increase in knowledge scores following patient education, shown by a mean score of 8.6 ± 1.5, demonstrating the tool's responsiveness to changes in patient understanding of RA.
Conclusion: PKQ-RA-11 is a standardized tool for assessing disease-related knowledge in individuals with RA. It can be used to provide objective and transparent measures of patient understanding in educational programmes, clinical practice, or research.
期刊介绍：
Scandinavian Journal of Rheumatology is the official journal of the Scandinavian Society for Rheumatology, a non-profit organization following the statutes of the Scandinavian Society for Rheumatology/Scandinavian Research Foundation. The main objective of the Foundation is to support research and promote information and knowledge about rheumatology and related fields. The annual surplus by running the Journal is awarded to young, talented, researchers within the field of rheumatology.pasting
The Scandinavian Journal of Rheumatology is an international scientific journal covering clinical and experimental aspects of rheumatic diseases. The journal provides essential reading for rheumatologists as well as general practitioners, orthopaedic surgeons, radiologists, pharmacologists, pathologists and other health professionals with an interest in patients with rheumatic diseases.
The journal publishes original articles as well as reviews, editorials, letters and supplements within the various fields of clinical and experimental rheumatology, including;
Epidemiology
Aetiology and pathogenesis
Treatment and prophylaxis
Laboratory aspects including genetics, biochemistry, immunology, immunopathology, microbiology, histopathology, pathophysiology and pharmacology
Radiological aspects including X-ray, ultrasonography, CT, MRI and other forms of imaging.
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