Returning individualized wearable sensor results to older adult research participants: A pilot study.

Shelby L Bachman, Krista S Leonard-Corzo, Jennifer M Blankenship, Michael A Busa, Corinna Serviente, Matthew W Limoges, Robert T Marcotte, Ieuan Clay, Kate Lyden
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Abstract

Background: Wearable sensors that monitor physical behaviors are increasingly adopted in clinical research. Older adult research participants have expressed interest in tracking and receiving feedback on their physical behaviors. Simultaneously, researchers and clinical trial sponsors are interested in returning results to participants, but the question of how to return individual study results derived from research-grade wearable sensors remains unanswered. In this study, we (1) assessed the feasibility of returning individual physical behavior results to older adult research participants and (2) obtained participant feedback on the returned results.

Methods: Older adult participants (N=20; ages 67-96) underwent 14 days of remote monitoring with two wearable sensors. We then used a semi-automated process to generate a 1-page report summarizing each participant's physical behaviors across the 14 days. This report was delivered to each participant via email, and they were asked to evaluate the report.

Results: Participants found the reports easy to understand, health-relevant, interesting, and visually pleasing. They had valuable suggestions to improve data interpretability and raised concerns such as comparisons with measures derived from their consumer-grade sensors.

Conclusions: We have demonstrated the feasibility of returning individual physical behavior results from research-grade devices to older research participants, and our results indicate that this practice is well-received. Further research to develop more efficient and scalable systems to return results to participants, and to understand the preferences of participants in larger, more representative samples, is warranted.

背景:监测身体行为的可穿戴传感器越来越多地被临床研究采用。老年研究参与者表示有兴趣跟踪并接收有关其身体行为的反馈。与此同时,研究人员和临床试验赞助商也对向参与者返还研究结果感兴趣,但如何返还研究级可穿戴传感器得出的单个研究结果这一问题仍未解决。在本研究中,我们(1)评估了向老年研究参与者返还个人身体行为结果的可行性;(2)获得了参与者对返还结果的反馈:方法:老年参与者(20 人;年龄 67-96 岁)使用两个可穿戴传感器接受了 14 天的远程监测。然后,我们使用半自动化流程生成一份 1 页的报告,总结每位参与者在 14 天内的身体行为。这份报告通过电子邮件发送给每位参与者,并要求他们对报告进行评价:结果:参与者认为报告通俗易懂、与健康相关、有趣且美观。他们为提高数据的可解释性提出了宝贵的建议,并提出了一些值得关注的问题,如与消费级传感器得出的测量结果进行比较等:我们已经证明了将研究级设备的个人身体行为结果返回给老年研究参与者的可行性,结果表明这种做法很受欢迎。我们有必要开展进一步的研究,以开发更高效、更可扩展的系统,将结果返回给参与者,并在更大规模、更具代表性的样本中了解参与者的偏好。
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