Measuring health-related quality of life: a qualitative study of mental health patients' experiences of impacts of mental health issues.

IF 2.1 4区医学 Q2 NURSING

International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2025-12-01 Epub Date: 2025-02-20 DOI:10.1080/17482631.2025.2465209

Yeujin Ki, Andrew Athan Mcaleavey, Janne-Merete Torset Øien, Tron Anders Moger, Christian Moltu

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引用次数: 0

Abstract

Background: Existing instruments used in health economics to measure health-related quality of life (HRQoL) have been criticized as they might not sufficiently reflect the HRQoL impacts of mental health problems. Our study investigates mental health patients' experiences of such impacts with a view to identifying potential domains that conventional HRQoL instruments might overlook.

Methods: Semi-structured, in-depth interviews were conducted with 16 participants receiving specialist mental health services in Norway. Interviews were analysed using reflexive thematic analysis.

Results: Five main themes were identified describing mental disorders' impact on patients' HRQoL: "Reduced functioning impacts", "Mental process impacts", "Social impacts", "Fragility", and "Sleep difficulty". While some overlap with conventional HRQoL instruments exists, distinct dimensions were identified, notably, "Fragility," encompassing unpredictability and inflexibility in daily life.

Conclusions: The findings suggest that comprehensive assessment should consider broader mental health impacts beyond anxiety and depression, including cognitive difficulties, obstructive self-perception, and feelings of meaninglessness. Additionally, the impact of unpredictability on daily functioning and the role of sleep difficulties should be incorporated. These insights can inform the development of more patient-centred HRQoL measures for mental health populations, potentially leading to more accurate evaluation of mental health interventions.

查看原文本刊更多论文

测量与健康相关的生活质量：对心理健康患者对心理健康问题影响的体验的定性研究。

背景：卫生经济学中用于测量健康相关生活质量（HRQoL）的现有工具受到批评，因为它们可能不能充分反映心理健康问题对HRQoL的影响。我们的研究调查了精神健康患者对这种影响的经历，以确定传统HRQoL仪器可能忽略的潜在领域。方法：对在挪威接受专业精神卫生服务的16名参与者进行了半结构化的深度访谈。访谈采用反身性专题分析进行分析。结果：确定了五个主要主题来描述精神障碍对患者HRQoL的影响：“功能降低影响”、“心理过程影响”、“社会影响”、“脆弱性”和“睡眠困难”。虽然与传统HRQoL工具存在一些重叠，但确定了不同的维度，特别是“脆弱性”，包括日常生活中的不可预测性和不灵活性。结论：研究结果表明，综合评估应考虑焦虑和抑郁以外更广泛的心理健康影响，包括认知困难、自我认知障碍和无意义感。此外，不可预测性对日常功能的影响和睡眠困难的作用也应该考虑在内。这些见解可以为精神卫生人群制定更多以患者为中心的HRQoL措施提供信息，可能导致对精神卫生干预措施的更准确评估。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

International Journal of Qualitative Studies on Health and Well-Being Multiple-

CiteScore

3.20

自引率

5.60%

发文量

审稿时长

14 weeks

期刊介绍： International Journal of Qualitative Studies on Health and Well-being acknowledges the international and interdisciplinary nature of health-related issues. It intends to provide a meeting-point for studies using rigorous qualitative methodology of significance for issues related to human health and well-being. The aim of the International Journal of Qualitative Studies on Health and Well-being is to support and to shape the emerging field of qualitative studies and to encourage a better understanding of all aspects of human health and well-being.