The effect of intolerance of uncertainty, sleep quality, and social support on caregiver burden in parents of children with chronic diseases: A cross-sectional study

IF 2.1 4区医学 Q2 NURSING

Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2025-03-01 DOI:10.1016/j.pedn.2025.02.006

Furkan Doğaner , Raziye Celen

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引用次数: 0

Abstract

Aim

This study aims to determine the effect of intolerance of uncertainty, sleep quality, and social support on caregiver burden among parents of children with chronic diseases.

Methods

This cross-sectional study was carried out on parents of children with chronic illnesses (n = 144), who were admitted to a medical faculty hospital in Turkey from June 2023 until June 2024. The data collection was conducted using the “Family Information Form,” the “Pittsburgh Sleep Quality Index,” the “Multidimensional Scale of Perceived Social Support,” the “Intolerance of Uncertainty Scale,” and the “Caregiver Burden Scale”. Data were analyzed using Student's t-test, one-way ANOVA, and multiple linear regression analysis.

Results

Participants' mean scores were found to be 37.5 ± 14.43 on the Caregiver Burden scale, 8.37 ± 3.25 on the Pittsburgh Sleep Quality Index, 66.06 ± 13.87 on the Multidimensional Scale of Perceived Social Support, and 38.97 ± 10.25 on the Intolerance of Uncertainty Scale. Income level (β = 0.252), level of intolerance of uncertainty (β = 0.200), and the number of the child's hospitalizations in the past year (β = 0.266) were significant predictors affecting the caregiver burden.

Conclusion

This study revealed that parental caregiver burden was related with intolerance of uncertainty, income status, and the number of the child's hospitalizations.

查看原文本刊更多论文

不确定性的不耐受、睡眠质量和社会支持对慢性疾病儿童父母照顾者负担的影响：一项横断面研究

目的：本研究旨在探讨不确定性不耐受、睡眠质量和社会支持对慢性病患儿家长照顾者负担的影响。方法：本横断面研究对患有慢性疾病儿童的父母（n = 144）进行了研究，这些儿童于2023年6月至2024年6月在土耳其的一家医学院医院住院。数据收集采用“家庭信息表”、“匹兹堡睡眠质量指数”、“感知社会支持多维度量表”、“不确定性不耐受量表”和“照顾者负担量表”。数据分析采用学生t检验、单因素方差分析和多元线性回归分析。结果：参与者的照顾者负担量表平均得分为37.5±14.43分，匹兹堡睡眠质量指数平均得分为8.37±3.25分，感知社会支持多维量表平均得分为66.06±13.87分，不确定性不耐受量表平均得分为38.97±10.25分。收入水平（β = 0.252）、不确定性耐受水平（β = 0.200）和儿童过去一年的住院次数（β = 0.266）是影响照顾者负担的显著预测因子。结论：本研究揭示了父母照顾者负担与不确定性耐受性、收入状况和儿童住院次数有关。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Pediatric Nursing-Nursing Care of Children & Families NURSING-PEDIATRICS

CiteScore

3.70

自引率

8.30%

发文量

291

审稿时长

65 days

期刊介绍： Official Journal of the Society of Pediatric Nurses and the Pediatric Endocrinology Nursing Society (PENS) The Journal of Pediatric Nursing: Nursing Care of Children and Families (JPN) is interested in publishing evidence-based practice, quality improvement, theory, and research papers on a variety of topics from US and international authors. JPN is the official journal of the Society of Pediatric Nurses and the Pediatric Endocrinology Nursing Society. Cecily L. Betz, PhD, RN, FAAN is the Founder and Editor in Chief. Journal content covers the life span from birth to adolescence. Submissions should be pertinent to the nursing care needs of healthy and ill infants, children, and adolescents, addressing their biopsychosocial needs. JPN also features the following regular columns for which authors may submit brief papers: Hot Topics and Technology.