Experiences, Challenges and Informational Needs of Patients With Oral Epithelial Dysplasia.

IF 2.9 3区医学 Q1 DENTISTRY, ORAL SURGERY & MEDICINE

Oral diseases Pub Date : 2025-02-17 DOI:10.1111/odi.15289

Waleed Alamoudi, Richeal Ni Riordain, Stefano Fedele, Stephen Porter

{"title":"Experiences, Challenges and Informational Needs of Patients With Oral Epithelial Dysplasia.","authors":"Waleed Alamoudi, Richeal Ni Riordain, Stefano Fedele, Stephen Porter","doi":"10.1111/odi.15289","DOIUrl":null,"url":null,"abstract":"Objectives: This study aims to explore the patients' experiences with oral epithelial dysplasia (OED) to identify associated clinical challenges and informational needs.Methods: Semi-structured interviews, guided by a topic outline, addressed disease-specific information, investigative procedures, treatments, impacts on quality of life, healthcare systems and information sources. The interviews were audio recorded, transcribed verbatim and analysed using thematic analysis.Results: A total of 30 individuals participated in the study. Four primary themes were identified: delays in diagnosis, knowledge about OED, the psychological impact of the disease and patient education.Conclusion: To our knowledge, this is the first qualitative study to explore the lived experiences of patients with OED. It highlights significant challenges, including accessing appropriate medical services, delays in diagnosis, physical and psychological burdens and the need for better education. Positive experiences were noted when patients received care from knowledgeable clinicians who provided consistent education and effective communication. The findings of this study may guide the future development of measurement tools on the outcome measures of individuals with OED.","PeriodicalId":19615,"journal":{"name":"Oral diseases","volume":" ","pages":""},"PeriodicalIF":2.9000,"publicationDate":"2025-02-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Oral diseases","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1111/odi.15289","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"DENTISTRY, ORAL SURGERY & MEDICINE","Score":null,"Total":0}

引用次数: 0

Abstract

Objectives: This study aims to explore the patients' experiences with oral epithelial dysplasia (OED) to identify associated clinical challenges and informational needs.

Methods: Semi-structured interviews, guided by a topic outline, addressed disease-specific information, investigative procedures, treatments, impacts on quality of life, healthcare systems and information sources. The interviews were audio recorded, transcribed verbatim and analysed using thematic analysis.

Results: A total of 30 individuals participated in the study. Four primary themes were identified: delays in diagnosis, knowledge about OED, the psychological impact of the disease and patient education.

Conclusion: To our knowledge, this is the first qualitative study to explore the lived experiences of patients with OED. It highlights significant challenges, including accessing appropriate medical services, delays in diagnosis, physical and psychological burdens and the need for better education. Positive experiences were noted when patients received care from knowledgeable clinicians who provided consistent education and effective communication. The findings of this study may guide the future development of measurement tools on the outcome measures of individuals with OED.

查看原文本刊更多论文

口腔上皮发育不良患者的经验、挑战和信息需求。

目的：本研究旨在探讨口腔上皮细胞发育不良（OED）患者的经历，以确定相关的临床挑战和信息需求。方法：半结构化访谈，在主题大纲的指导下，讨论疾病特定信息，调查程序，治疗，对生活质量的影响，医疗保健系统和信息来源。访谈录音，逐字抄录，并采用专题分析进行分析。结果：共有30人参与了本研究。确定了四个主要主题：诊断延误、关于OED的知识、该疾病的心理影响和患者教育。结论：据我们所知，这是第一个探讨OED患者生活经历的定性研究。它强调了重大挑战，包括获得适当的医疗服务、诊断延误、身心负担以及需要更好的教育。当患者接受知识渊博的临床医生的护理时，他们提供了持续的教育和有效的沟通。本研究的结果可能指导未来发展的测量工具，对个体的结果测量的牛津英语障碍。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

求助全文

约1分钟内获得全文求助全文

来源期刊

Oral diseases 医学-牙科与口腔外科

CiteScore

7.60

自引率

5.30%

发文量

325

审稿时长

4-8 weeks

期刊介绍： Oral Diseases is a multidisciplinary and international journal with a focus on head and neck disorders, edited by leaders in the field, Professor Giovanni Lodi (Editor-in-Chief, Milan, Italy), Professor Stefano Petti (Deputy Editor, Rome, Italy) and Associate Professor Gulshan Sunavala-Dossabhoy (Deputy Editor, Shreveport, LA, USA). The journal is pre-eminent in oral medicine. Oral Diseases specifically strives to link often-isolated areas of dentistry and medicine through broad-based scholarship that includes well-designed and controlled clinical research, analytical epidemiology, and the translation of basic science in pre-clinical studies. The journal typically publishes articles relevant to many related medical specialties including especially dermatology, gastroenterology, hematology, immunology, infectious diseases, neuropsychiatry, oncology and otolaryngology. The essential requirement is that all submitted research is hypothesis-driven, with significant positive and negative results both welcomed. Equal publication emphasis is placed on etiology, pathogenesis, diagnosis, prevention and treatment.