‘What Matters, Doctor?’ A Qualitative and Inclusive Study of the Experience of Mainstream Healthcare Among People With Intellectual Disabilities in Belgium

IF 2.1 3区医学 Q2 PSYCHOLOGY, EDUCATIONAL

Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-02-11 DOI:10.1111/jar.70020

A. Miceli, L. Lucassen, R. Rinaldi, N. Van Ooteghem, D. Walter, M. Perau, C. Kahwaji, A. Mayart, E. Batselé

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引用次数: 0

Abstract

Background

This study investigates the healthcare needs and experiences of adults with intellectual disabilities, focusing on identifying areas for improvement. Its innovation lies in including individuals with intellectual disabilities as co-researchers in the research process.

Method

Thematic analysis was performed on five focus groups with 30 participants, exploring access to healthcare. Three co-researchers played active roles in reviewing the interview, recruitment, facilitation and co-analysis of results.

Results

Three types of specific needs emerged: communication, relational and support needs, as well as challenges in empowerment and shortcomings in the skills of professionals.

Conclusions

Intervention programmes aimed at training doctors and healthcare professionals should consider the specific difficulties and needs of people with intellectual disability, and their input should be prioritised in the design of these interventions.

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“有什么关系，医生？”比利时智障人士主流医疗保健经验的定性和包容性研究

本研究调查了成人智障患者的医疗保健需求和经验，重点是确定需要改进的领域。它的创新之处在于将智障人士纳入研究过程的共同研究人员。方法采用专题分析方法，分5个焦点小组，共30人，探讨医疗保健可及性。三位共同研究人员在审查面试、招募、促进和共同分析结果方面发挥了积极作用。结果出现了三类特定需求：沟通、关系和支持需求，以及授权方面的挑战和专业人员技能方面的不足。结论以培训医生和卫生保健专业人员为目的的干预方案应考虑智力残疾者的具体困难和需求，并应在这些干预措施的设计中优先考虑他们的投入。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Applied Research in Intellectual Disabilities Multiple-

CiteScore

4.70

自引率

12.50%

发文量

期刊介绍： JARID is an international, peer-reviewed journal which draws together findings derived from original applied research in intellectual disabilities. The journal is an important forum for the dissemination of ideas to promote valued lifestyles for people with intellectual disabilities. It reports on research from the UK and overseas by authors from all relevant professional disciplines. It is aimed at an international, multi-disciplinary readership. Topics covered include community living, quality of life, challenging behaviour, communication, sexuality, medication, ageing, supported employment, family issues, mental health, physical health, autism, economic issues, social networks, staff stress, staff training, epidemiology and service provision.