Questionnaire survey on the long-term quality of life of patients with congenital esophageal atresia in Japan.

IF 1.6 4区医学 Q2 SURGERY

Surgery Today Pub Date : 2025-08-01 Epub Date: 2025-02-07 DOI:10.1007/s00595-025-03010-4

Reina Hoshi, Shuichiro Uehara, Jun Fujishiro, Tsugumichi Koshinaga, Tomoaki Taguchi

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引用次数: 0

Abstract

Purpose: To identify the current challenges faced by children with surgically treated esophageal atresia (EA) at the start of elementary, junior high, and high schools.

Methods: Questionnaire surveys were administered at the pediatric surgery departments of 19 representative institutions across Japan between December 1, 2018, and January 31, 2019. The surveys included gross classification, status of hospital visits, surgical procedures, postoperative complications, symptoms at the time of the final evaluation, status of school attendance, and related information at 7, 13, and 16 years old.

Results: A total of 572 children with EA were included. Data from 59 first-grade elementary school students, 42 first-year junior high school students, and 30 first-year high school students were extracted for this study. Most postoperative complications remained unresolved, and many children with EA continued to exhibit symptoms at the final evaluation. Despite many children having clinical and academic problems, 33% (43/131) were lost to follow up.

Conclusion: Older children with EA experience various problems. Long-term follow-up and continuous support are important for all EA patients.

查看原文本刊更多论文

日本先天性食管闭锁患者长期生活质量问卷调查。

目的：了解在小学、初中和高中开始接受手术治疗的食管闭锁（EA）儿童目前面临的挑战。方法：于2018年12月1日至2019年1月31日在日本19家代表性机构的儿科外科进行问卷调查。调查内容包括总体分类、医院就诊情况、手术程序、术后并发症、最终评估时的症状、上学情况以及7岁、13岁和16岁时的相关信息。结果：共纳入572例EA患儿。本研究抽取了59名小学一年级学生、42名初中一年级学生和30名高中一年级学生的数据。大多数术后并发症仍未解决，许多EA患儿在最终评估时仍表现出症状。尽管许多儿童有临床和学业问题，但仍有33%（43/131）未能随访。结论：年龄较大的EA患儿存在多种问题。长期随访和持续支持对所有EA患者都很重要。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Surgery Today 医学-外科

CiteScore

4.90

自引率

4.00%

发文量

208

审稿时长

1 months

期刊介绍： Surgery Today is the official journal of the Japan Surgical Society. The main purpose of the journal is to provide a place for the publication of high-quality papers documenting recent advances and new developments in all fields of surgery, both clinical and experimental. The journal welcomes original papers, review articles, and short communications, as well as short technical reports("How to do it"). The "How to do it" section will includes short articles on methods or techniques recommended for practical surgery. Papers submitted to the journal are reviewed by an international editorial board. Field of interest: All fields of surgery.