Pediatric palliative care in patients with cardiovascular disease: The basics of why, when, where, who and how

IF 0.6 Q4 PEDIATRICS

PROGRESS IN PEDIATRIC CARDIOLOGY Pub Date : 2025-01-15 DOI:10.1016/j.ppedcard.2025.101810

Brandy Merritt , Kara Nix , Laney Smith , Hope Lund , Meagan Jones , Rene Sprague , Lynn A. Batten

{"title":"Pediatric palliative care in patients with cardiovascular disease: The basics of why, when, where, who and how","authors":"Brandy Merritt , Kara Nix , Laney Smith , Hope Lund , Meagan Jones , Rene Sprague , Lynn A. Batten","doi":"10.1016/j.ppedcard.2025.101810","DOIUrl":null,"url":null,"abstract":"<div><h3>Background</h3><div>Pediatric Palliative Care (PPC) has been shown to offer a wide berth of supportive services for families as they navigate life with pediatric heart disease. PPC assists families in medical decision making, symptom management, emotional and spiritual resources, clarifying goals, educating families on medical and community resources, and advanced care planning.</div></div><div><h3>Aim of review</h3><div>The aim of this review is to examine the data that shows early PPC consultation at diagnosis, often even prior to birth, gives the best opportunity to access the multitude of services. Building early relationships during times of wellness allows the PPC team to be a strong and crucial support for families when critical illness or surgical needs arise. Many barriers prevent pediatric cardiologists and pediatric cardiovascular surgeons from incorporating these benefits for their patients. There is a national lack of access to PPC programs. Therefore, it is important to educate providers on the services PPC can provide so children with pediatric heart conditions will be able to live longer and better lives.</div></div><div><h3>Key scientific concepts of review</h3><div>We reviewed the current literature to summarize benefits of early introduction of PPC in complex cardiac conditions.</div></div>","PeriodicalId":46028,"journal":{"name":"PROGRESS IN PEDIATRIC CARDIOLOGY","volume":"77 ","pages":"Article 101810"},"PeriodicalIF":0.6000,"publicationDate":"2025-01-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"PROGRESS IN PEDIATRIC CARDIOLOGY","FirstCategoryId":"1085","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S1058981325000025","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q4","JCRName":"PEDIATRICS","Score":null,"Total":0}

引用次数: 0

Abstract

Background

Pediatric Palliative Care (PPC) has been shown to offer a wide berth of supportive services for families as they navigate life with pediatric heart disease. PPC assists families in medical decision making, symptom management, emotional and spiritual resources, clarifying goals, educating families on medical and community resources, and advanced care planning.

Aim of review

The aim of this review is to examine the data that shows early PPC consultation at diagnosis, often even prior to birth, gives the best opportunity to access the multitude of services. Building early relationships during times of wellness allows the PPC team to be a strong and crucial support for families when critical illness or surgical needs arise. Many barriers prevent pediatric cardiologists and pediatric cardiovascular surgeons from incorporating these benefits for their patients. There is a national lack of access to PPC programs. Therefore, it is important to educate providers on the services PPC can provide so children with pediatric heart conditions will be able to live longer and better lives.

Key scientific concepts of review

We reviewed the current literature to summarize benefits of early introduction of PPC in complex cardiac conditions.

查看原文本刊更多论文

求助全文

约1分钟内获得全文求助全文

来源期刊

PROGRESS IN PEDIATRIC CARDIOLOGY PEDIATRICS-

CiteScore

0.90

自引率

11.10%

发文量

审稿时长

75 days

期刊介绍： Progress in Pediatric Cardiology is an international journal of review presenting information and experienced opinion of importance in the understanding and management of cardiovascular diseases in children. Each issue is prepared by one or more Guest Editors and reviews a single subject, allowing for comprehensive presentations of complex, multifaceted or rapidly changing topics of clinical and investigative interest.