Alex Kobrin, Olivia Chan, Emily Crabtree, Joe Zickafoose, Amy Wodarek O'Reilly, Edward Schor, Holly Henry, Allison Gray
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引用次数: 0
Abstract
Introduction: Referrals to peer support (PS) can help families of children with special health care needs in providing emotional support, reducing feelings of stress and anxiety, and improving the care experience. This study aimed to gain providers' perspectives about PS referrals for families of children with special health care needs, including their perspectives on logistics of, barriers to, and facilitators of making referrals as well as the perceived impacts of PS referrals.
Methods: This study builds on a 2022 survey of California pediatric subspecialists about the value and challenges of PS. The study team conducted 20 semistructured interviews with people from pediatric subspecialty practices in California and used a priori themes derived from the interview protocol to develop a codebook, code interview transcripts, conduct a thematic analysis, and summarize findings.
Results: Respondents offered a variety of PS referrals inside and outside their institutions, tailoring referrals to each family's needs and preferences. Social workers and family liaisons were most commonly responsible for making PS referrals. Respondents found that care team collaboration and ease of sharing information about PS resources among colleagues facilitated the referral process. Respondents noted a need for more PS resources, including funding, education, and the need for a network where providers can identify PS resources.
Discussion: Encouraging PS program information-sharing within and across organizations could help connect more families to PS services. Future research should assess families' experiences with PS referrals and services to understand approaches that can best meet their needs for information, instrumental, and emotional supports.
期刊介绍:
Maternal and Child Health Journal is the first exclusive forum to advance the scientific and professional knowledge base of the maternal and child health (MCH) field. This bimonthly provides peer-reviewed papers addressing the following areas of MCH practice, policy, and research: MCH epidemiology, demography, and health status assessment
Innovative MCH service initiatives
Implementation of MCH programs
MCH policy analysis and advocacy
MCH professional development.
Exploring the full spectrum of the MCH field, Maternal and Child Health Journal is an important tool for practitioners as well as academics in public health, obstetrics, gynecology, prenatal medicine, pediatrics, and neonatology.
Sponsors include the Association of Maternal and Child Health Programs (AMCHP), the Association of Teachers of Maternal and Child Health (ATMCH), and CityMatCH.