'Such a lot of bother': Qualitative results of a home trial of a wearable electronic vision enhancement system for people with age-related macular degeneration.

IF 2.8 3区 医学 Q1 OPHTHALMOLOGY
Ophthalmic and Physiological Optics Pub Date : 2025-05-01 Epub Date: 2025-01-24 DOI:10.1111/opo.13453
Andrew Miller, Jane Macnaughton, Michael D Crossland, Keziah Latham
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引用次数: 0

Abstract

Purpose: Wearable electronic low vision enhancement systems (wEVES) improve visual function but are not widely adopted by people with vision impairment. Here, qualitative research methods were used to investigate the usefulness of wEVES for people with age-related macular degeneration (AMD) after an extended home trial.

Methods: Following a 12-week non-masked randomised crossover trial, semi-structured interviews were completed with 34 participants with AMD, 64.7% female, mean age 80.2 (±6.0) years, mean distance visual acuity 0.81logMAR (±0.32). Reflexive thematic analysis was used to analyse the data.

Results: Four themes were developed: (i) early positivity and potential; (ii) you're not good enough: performance barriers of the device; (iii) you're annoying: practicality barriers of the device and (iv) we can fix this together. First, participants expressed joy in an aesthetically appealing device perceived as potentially enabling, different and complementary to their current solutions. Imagined usefulness included not only reading, shopping and television but also resuming abandoned hobbies. The second theme captured performance barriers that restricted numerous activities but were most acutely noted with manipulation tasks. Barriers included image quality, screen size and short-lived adverse effects. The third theme conveyed the multiple practical challenges that caused annoyance, preventing imagined usage even when performance appeared superior to other solutions. Slow start-up times and the inability to use wEVES dynamically prevented integration within users' lifestyles. The final theme reflected that wEVES remained a desirable concept, but future iterations require inclusive design methodology to ensure development is directed by consumers' needs.

Conclusions: Performance and practicality barriers limit the usefulness of a device initially seen as desirable. Current devices do not align with users' requirements for flexible use, even when performance is good. Improvements in technology may solve performance barriers, but these changes must be inclusively designed and evaluated to ensure the device integrates more successfully into the lives of users with AMD.

“太麻烦了”:针对老年性黄斑变性患者的可穿戴电子视觉增强系统家庭试验的定性结果。
目的:可穿戴电子低视力增强系统(wEVES)可改善视觉功能,但在视力障碍人群中应用并不广泛。本研究采用定性研究方法,在延长的家庭试验后调查wEVES对年龄相关性黄斑变性(AMD)患者的有用性。方法:在为期12周的非盲随机交叉试验中,对34名AMD患者进行半结构化访谈,其中64.7%为女性,平均年龄80.2(±6.0)岁,平均距离视力0.81logMAR(±0.32)。采用自反性主题分析对数据进行分析。结果:开发了四个主题:(i)早期的积极性和潜力;(ii)你不够好:设备的性能障碍;(iii)你很烦人:设备的实用性障碍(iv)我们可以一起解决这个问题。首先,参与者表达了对一个美观的设备的喜悦,他们认为这个设备可能是现有解决方案的潜在支持、不同和补充。想象中的有用性不仅包括阅读、购物和看电视,还包括恢复放弃的爱好。第二个主题捕获了限制许多活动的性能障碍,但最明显的是操作任务。障碍包括图像质量、屏幕尺寸和短期副作用。第三个主题传达了导致烦恼的多种实际挑战,即使性能看起来优于其他解决方案,也会阻止想象中的使用。缓慢的启动时间和无法动态使用wEVES阻碍了用户生活方式的整合。最后的主题反映了wEVES仍然是一个理想的概念,但未来的迭代需要包容性的设计方法,以确保开发以消费者的需求为导向。结论:性能和实用性的障碍限制了一种最初被认为是理想的设备的实用性。目前的设备不能满足用户对灵活使用的要求,即使性能很好。技术的改进可能会解决性能障碍,但这些变化必须经过全面的设计和评估,以确保设备更成功地融入AMD用户的生活。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
CiteScore
5.10
自引率
13.80%
发文量
135
审稿时长
6-12 weeks
期刊介绍: Ophthalmic & Physiological Optics, first published in 1925, is a leading international interdisciplinary journal that addresses basic and applied questions pertinent to contemporary research in vision science and optometry. OPO publishes original research papers, technical notes, reviews and letters and will interest researchers, educators and clinicians concerned with the development, use and restoration of vision.
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