Empowerment in Adolescent Patients with a Disability/Chronic Condition: A Scoping Review.

IF 2 4区医学 Q2 PEDIATRICS

Children-Basel Pub Date : 2024-12-31 DOI:10.3390/children12010049

Kennedy Austin, Carly Pistawka, Colin J D Ross, Kathryn A Selby, Alice Virani, Vanessa Kitchin, Alison M Elliott

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引用次数: 0

Abstract

Background/objectives: Empowerment has been associated with several positive outcomes in healthcare; however, there is limited insight on empowerment levels within the adolescent population of those with a chronic condition/disability. The aim of this scoping review was to identify gaps in the existing literature on empowerment levels within this population.

Methods: Five databases (MEDLINE [Ovid], EMBASE [Ovid], PsycINFO [Ebsco], CINHAL [Ebsco] and Web of Science [UBC]) and grey literature were searched.

Results: A total of 67 studies were included and used for data extraction including descriptive numerical analysis followed by a narrative review. Extracted data were divided into demographic characteristics (e.g., ethnicity/ancestry), type of disability/condition (e.g., type 1 diabetes), interventions used to increase empowerment or empowerment-adjacent elements, quantitative and qualitative tools used to measure empowerment (e.g., questionnaires and/or interviews), domains/outcomes associated with empowerment (e.g., self-control), and review articles. Several interventions were shown to have positive effects on empowerment levels in adolescents with a chronic condition/disability.

Conclusions: Gaps were identified in the consideration of ethnicity/ancestry and socioeconomic status, demonstrating a need for future research in this space to focus on the intersection of disability, ethnicity/ancestry, and socio-economic status and the implementation of interventions promoting empowerment.

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背景/目的：赋权与医疗保健领域的一些积极成果相关联；然而，对于患有慢性疾病/残疾的青少年群体的赋权水平，我们的了解还很有限。本范围综述旨在找出现有文献中有关该人群赋权水平的不足之处：检索了五个数据库（MEDLINE [Ovid], EMBASE [Ovid], PsycINFO [Ebsco], CINHAL [Ebsco] 和 Web of Science [UBC]）和灰色文献：共纳入 67 项研究，并对其进行了数据提取，包括描述性数字分析和叙述性综述。提取的数据分为人口统计学特征（如种族/血统）、残疾/病症类型（如 1 型糖尿病）、用于增强赋权的干预措施或与赋权相关的因素、用于测量赋权的定量和定性工具（如问卷和/或访谈）、与赋权相关的领域/结果（如自我控制）以及综述文章。一些干预措施对患有慢性疾病/残疾的青少年的赋权水平产生了积极影响：在对种族/宗族和社会经济地位的考虑方面发现了差距，这表明未来在这一领域的研究需要关注残疾、种族/宗族和社会经济地位的交叉点，以及促进赋权的干预措施的实施。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Children-Basel PEDIATRICS-

CiteScore

2.70

自引率

16.70%

发文量

1735

审稿时长

6 weeks

期刊介绍： Children is an international, open access journal dedicated to a streamlined, yet scientifically rigorous, dissemination of peer-reviewed science related to childhood health and disease in developed and developing countries. The publication focuses on sharing clinical, epidemiological and translational science relevant to children’s health. Moreover, the primary goals of the publication are to highlight under‑represented pediatric disciplines, to emphasize interdisciplinary research and to disseminate advances in knowledge in global child health. In addition to original research, the journal publishes expert editorials and commentaries, clinical case reports, and insightful communications reflecting the latest developments in pediatric medicine. By publishing meritorious articles as soon as the editorial review process is completed, rather than at predefined intervals, Children also permits rapid open access sharing of new information, allowing us to reach the broadest audience in the most expedient fashion.