Needs Assessment to Guide the Development of a Pediatric Survivorship Program to Promote the Physical and Psychological Well-being of Children After Cancer Treatment.

Abstract

Background: Studies have provided insights into the major challenges and needs of young children who survive cancer. Many such challenges are related to a lack of support during the patient's transition back to normal life. Survivorship programs are designed to help survivors cope with potential late effects of treatment and to provide psychosocial support. However, there is not yet a survivorship program in Hong Kong that provides young survivors with continuous care.

Objectives: To explore the challenges and needs faced by pediatric cancer survivors during their transition from patient to survivor and to guide the development of the survivorship program.

Methods: A qualitative descriptive design utilizing purposive sampling was used. Semistructured interviews were conducted with 30 pediatric cancer survivors aged between 9 and 18 years, along with their parents/caregivers, as well as 5 pediatric cancer oncology nurses and 3 pediatric oncologists.

Results: The interviews yielded 4 overarching themes: (1) challenges in school reintegration, (2) concerns relating to physical and psychological well-being, (3) lack of social support and adaptation difficulties, and (4) needs for supportive care services.

Conclusion: The findings provide insights into the needs of pediatric cancer survivors, their parents, and other key stakeholders. These insights suggest that a pediatric cancer survivorship program should be established in Hong Kong as an essential component of the continuum of cancer care.

Implications for practice: Survivor clinic care should be enhanced to provide continuous support for children who have completed medical treatment and their caregivers, incorporating the perspectives of all stakeholders.