Supporting the Advancement of a National Agenda for Pediatric Healthcare Reform: A multi-year Evaluation of a Leadership Education in Neurodevelopmental and Related Disabilities Program.

IF 1.8 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH
Maternal and Child Health Journal Pub Date : 2025-02-01 Epub Date: 2025-01-23 DOI:10.1007/s10995-025-04040-7
Caitlin Koob, Sarah F Griffin, Mackenzie Stuenkel, Kathleen B Cartmell, Kerry Sease
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引用次数: 0

Abstract

Objectives: To evaluate the implementation and sustainability of the effect of a 1-year Leadership in Education for Neurodevelopmental and related Disabilities (LEND) program in a southeastern state, and to examine its impact on advancing the Maternal Child Health Bureau's (MCHB) Blueprint for Change-a national agenda for pediatric healthcare reform.

Methods: This study applies the Exploration, Preparation, Implementation, and Sustainment (EPIS) framework to rigorously evaluate LEND implementation and impact between 2018 and 2022. In-depth interviews (N = 24) were conducted among long-term (1-year) LEND trainees, via Zoom, in a southeastern state. A hybrid approach of deductive and inductive thematic analysis was conducted to identify emergent patterns and themes from trainees' experiences, related to the EPIS constructs and national priorities.

Results: Exploration and Preparation. Trainees identified insights from multidisciplinary discussions and family panels as key facilitators to their development.

Implementation: Trainees reported growth in confidence and communication and improving their service delivery, including implementation of a collaborative approach to patient care, family-centered care, and occasionally facilitating their obtainment of leadership positions. Trainees also reported systemic barriers to implementation, including time and financial constraints. Sustainability. Trainees identify their experienced shift in mindset and statewide connections as drivers for sustained change, with suggestions for follow-up events and networking opportunities to enhance the effect of LEND training.

Conclusions for practice: These results may inform LEND objectives to enhance the statewide network and to advance a national framework for prioritizing family well-being and quality of life and access to services.

支持儿科医疗改革国家议程的推进:对神经发育和相关残疾项目领导教育的多年评估。
目的:评估东南一个州为期一年的神经发育及相关残疾教育领导(LEND)项目的实施效果和可持续性,并检查其对推进妇幼卫生局(MCHB)变革蓝图的影响,这是一项儿科医疗改革的国家议程。方法:本研究采用探索、准备、实施和维持(EPIS)框架,严格评估2018年至2022年LEND的实施和影响。深度访谈(N = 24)在长期(1年)LEND学员中进行,通过Zoom,在东南部的一个州。采用演绎和归纳主题分析的混合方法,从受训者的经验中确定与EPIS结构和国家优先事项有关的新模式和主题。结果:探索和准备。学员们认为,多学科讨论和家庭小组的见解是促进他们发展的关键因素。实施情况:受训人员报告说,他们的信心和沟通有所增长,并改善了他们的服务提供,包括实施以病人护理为中心的合作方法,以家庭为中心的护理,并偶尔促进他们获得领导职位。受训人员还报告了实施方面的系统性障碍,包括时间和资金限制。可持续性。受训者认为他们经历过的心态转变和全州范围内的联系是持续变化的驱动力,并提出了后续活动和网络机会的建议,以提高LEND培训的效果。实践结论:这些结果可以为LEND的目标提供信息,以增强全州网络,并推进优先考虑家庭福祉、生活质量和获得服务的国家框架。
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来源期刊
Maternal and Child Health Journal
Maternal and Child Health Journal PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH-
CiteScore
3.20
自引率
4.30%
发文量
271
期刊介绍: Maternal and Child Health Journal is the first exclusive forum to advance the scientific and professional knowledge base of the maternal and child health (MCH) field. This bimonthly provides peer-reviewed papers addressing the following areas of MCH practice, policy, and research: MCH epidemiology, demography, and health status assessment Innovative MCH service initiatives Implementation of MCH programs MCH policy analysis and advocacy MCH professional development. Exploring the full spectrum of the MCH field, Maternal and Child Health Journal is an important tool for practitioners as well as academics in public health, obstetrics, gynecology, prenatal medicine, pediatrics, and neonatology. Sponsors include the Association of Maternal and Child Health Programs (AMCHP), the Association of Teachers of Maternal and Child Health (ATMCH), and CityMatCH.
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