Emotional and psychosocial functioning in youngsters with a congenital heart disease (CHD) in comparison to healthy controls

IF 2.1 4区医学 Q2 NURSING

Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2025-01-20 DOI:10.1016/j.pedn.2025.01.006

Saskia Mels , Fé De Mulder , Lien Goossens , Kristof Vandekerckhove , Katya De Groote

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引用次数: 0

Abstract

Objective

Due to their medical vulnerability, youngsters with congenital heart disease (CHD) may experience more overwhelming emotions than healthy peers. This multi-informant-based study aims to examine differences between these youngsters and their peers in psychosocial functioning, attachment and emotion regulation.

Study design

217 youngsters (8–18 years) with CHD (53.9 % boys, 46.1 % girls) were compared to 232 healthy controls (52.6 % boys, 47.4 % girls) matched for gender, age and education. Participants and parents completed online self-report questionnaires assessing psychosocial functioning (SDQ), attachment (ECR-RC), and maladaptive Emotion Regulation Strategies (ERS; FEEL-KJ).

Results

Based on child's self-reports MANOVA's showed no significant differences between the groups in psychosocial functioning. However, based on parent reports, differences were found between the groups in psychosocial functioning for the total scales and overarching subscales. No differences were found between the groups for insecure attachment to either parent. However, youngsters with CHD and their fathers reported more use of self-devaluation compared to controls (p = .03). Other maladaptive ERS (giving up, withdrawal, rumination, aggressive actions) showed no differences.

Conclusions

Care interventions for children with CHD should address medical, emotional, and social needs, with a focus on multi-informant evaluations to support emotional well-being. Nurses are important partners in detecting psychosocial difficulties and providing family support. Patient- and family-centered care involves patients, parents and caregivers in the care plan, recognizing their key role, especially as youngsters often perceive their psychosocial health differently than their parents. Although differences were noted compared to the control group, the study's cross-sectional design limits conclusions on evolution with time.

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与健康对照组相比，患有先天性心脏病（CHD）的青少年的情绪和社会心理功能

目的：由于医学上的脆弱性，患有先天性心脏病（CHD）的青少年可能比健康的同龄人经历更多的压倒性情绪。这项以多信息为基础的研究旨在研究这些青少年与同龄人在心理社会功能、依恋和情绪调节方面的差异。研究设计：217名患有冠心病的青少年（8-18岁）（53.9%为男孩，46.1%为女孩）与232名性别、年龄和教育程度相匹配的健康对照（52.6%为男孩，47.4%为女孩）进行比较。参与者和家长完成了在线自我报告问卷，评估心理社会功能（SDQ）、依恋（ECR-RC）和适应不良情绪调节策略（ERS）；FEEL-KJ)。结果：基于儿童自我报告的方差分析显示各组在心理社会功能方面无显著差异。然而，根据家长的报告，在总量表和总体子量表上发现了群体之间的社会心理功能差异。在对父母任何一方的不安全依恋方面，两组之间没有发现差异。然而，与对照组相比，患有冠心病的青少年及其父亲报告更多地使用自我贬低（p = .03）。其他适应不良的ERS（放弃、退缩、反刍、攻击行为）无差异。结论：对CHD儿童的护理干预应解决医疗、情感和社会需求，重点关注多信息提供者评估以支持情感健康。护士是发现社会心理困难和提供家庭支持的重要伙伴。以患者和家庭为中心的护理使患者、父母和照顾者参与到护理计划中，认识到他们的关键作用，特别是因为青少年对自己的心理社会健康的看法往往与父母不同。尽管与对照组相比存在差异，但该研究的横断面设计限制了对时间进化的结论。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Pediatric Nursing-Nursing Care of Children & Families NURSING-PEDIATRICS

CiteScore

3.70

自引率

8.30%

发文量

291

审稿时长

65 days

期刊介绍： Official Journal of the Society of Pediatric Nurses and the Pediatric Endocrinology Nursing Society (PENS) The Journal of Pediatric Nursing: Nursing Care of Children and Families (JPN) is interested in publishing evidence-based practice, quality improvement, theory, and research papers on a variety of topics from US and international authors. JPN is the official journal of the Society of Pediatric Nurses and the Pediatric Endocrinology Nursing Society. Cecily L. Betz, PhD, RN, FAAN is the Founder and Editor in Chief. Journal content covers the life span from birth to adolescence. Submissions should be pertinent to the nursing care needs of healthy and ill infants, children, and adolescents, addressing their biopsychosocial needs. JPN also features the following regular columns for which authors may submit brief papers: Hot Topics and Technology.