Feasibility and Acceptability of a Virtual "Dementia Awareness for Caregivers" Course in Brazil and India.

IF 1.8 4区医学 Q3 CLINICAL NEUROLOGY

Alzheimer Disease & Associated Disorders Pub Date : 2025-01-20 DOI:10.1097/WAD.0000000000000659

Raquel Luiza Santos de Carvalho, Emily Fisher, Nirupama Natarajan, Esther K Hui, Shreenila Venkatesan, Sridhar Vaitheswaran, Monisha Laksminarayanan, Paula Schimidt Brum, Renata Naylor-Batista, Elodie Bertrand, Daniel C Mograbi, Cleusa P Ferri, Charlotte Stoner, Aimee Spector

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引用次数: 0

Abstract

Objective: To establish whether a virtual dementia awareness course is feasible for caregivers of people with dementia in Brazil and India.

Methods: A pre/posttest single group, multisite feasibility study, mixed methods exploratory design was applied. Primary caregivers of people with dementia in Brazil and India took a 3 to 4-hour course adapted for online delivery, with 10 to 15 caregivers. Measurements encompassed self-reports of carer competence, attitudes to dementia, and caregiver burden; satisfaction questionnaire completed immediately after the intervention; open-ended questions at 1-month follow-up to assess if caregivers applied information to caregiving role; semistructured interviews about how the intervention changed caregivers' behavior and attitudes towards dementia.

Results: Of the 70 caregivers who received the intervention (Brazil = 34; India = 36), 54 (77.1%) completed postintervention outcomes, and 39 (55.7%) completed questionnaires at 1-month follow-up assessment. Significant improvements were observed in attitudes to dementia in both countries and self-perceived carer competence (in India) postintervention. The themes from the 9 semistructured interviews were: acceptability, feasibility, change of behavior/attitude, and suggestions for future sessions.

Conclusions: Dementia awareness course was a feasible online intervention to improve dementia awareness among family caregivers across countries. It offers a standardized yet flexible methodology, with promising outcomes that need to be evaluated in a full randomized controlled trial.

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巴西和印度虚拟“护理人员痴呆症意识”课程的可行性和可接受性。

目的：探讨虚拟痴呆认知课程在巴西和印度痴呆患者护理人员中是否可行。方法：采用单组、多点、混合方法的探索性设计。在巴西和印度，痴呆症患者的主要护理人员参加了一个3到4小时的在线课程，有10到15名护理人员参加。测量包括自我报告的照顾者能力、对痴呆症的态度和照顾者负担；干预后立即完成满意度问卷；随访1个月，采用开放式问题评估照顾者是否将信息应用于照顾角色；关于干预如何改变护理者对痴呆症的行为和态度的半结构化访谈。结果：在接受干预的70名护理人员中(巴西= 34；印度= 36)，54例（77.1%）完成干预后结局，39例（55.7%）完成1个月随访评估问卷。干预后，两国对痴呆症的态度和自我感知的护理能力（印度）均有显著改善。9个半结构化访谈的主题是：可接受性、可行性、行为/态度的改变以及对未来会议的建议。结论：痴呆意识课程是一种可行的在线干预措施，可以提高各国家庭照顾者对痴呆的认识。它提供了一种标准化但灵活的方法，其有希望的结果需要在完全随机对照试验中进行评估。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Alzheimer Disease & Associated Disorders 医学-病理学

CiteScore

3.10

自引率

4.80%

发文量

期刊介绍： Alzheimer Disease & Associated Disorders is a peer-reviewed, multidisciplinary journal directed to an audience of clinicians and researchers, with primary emphasis on Alzheimer disease and associated disorders. The journal publishes original articles emphasizing research in humans including epidemiologic studies, clinical trials and experimental studies, studies of diagnosis and biomarkers, as well as research on the health of persons with dementia and their caregivers. The scientific portion of the journal is augmented by reviews of the current literature, concepts, conjectures, and hypotheses in dementia, brief reports, and letters to the editor.