Longitudinal study of care needs and behavioural changes in people living with dementia using in-home assessment data.

IF 5.4 Q1 MEDICINE, RESEARCH & EXPERIMENTAL
Chloe Walsh, Alexander Capstick, Nan Fletcher-Lloyd, Jessica True, Ramin Nilforooshan, Payam Barnaghi
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Abstract

Background: People living with dementia often experience changes in independence and daily living, affecting their well-being and quality of life. Behavioural changes correlate with cognitive decline, functional impairment, caregiver distress, and care availability.

Methods: We use data from a 3-year prospective observational study of 141 people with dementia at home, using the Bristol Activities of Daily Living Scale, Neuropsychiatric Inventory and cognitive assessments, alongside self-reported and healthcare-related data.

Results: Here we show, psychiatric behavioural symptoms and difficulties in activities of daily living, fluctuate alongside cognitive decline. 677 activities of daily living and 632 psychiatric behaviour questionnaires are available at intervals of 3 months. Clustering shows three severity-based groups. Mild cognitive decline associates with higher caregiver anxiety, while the most severe group interacts more with community services, but less with hospitals.

Conclusions: We characterise behavioural symptoms and difficulties in activities of daily living in dementia, offering clinically relevant insights not commonly considered in current practice. We provide a holistic overview of participants' health during their progression of dementia.

利用家庭评估数据对痴呆症患者的护理需求和行为改变进行纵向研究。
背景:痴呆症患者经常经历独立性和日常生活的变化,影响他们的幸福感和生活质量。行为改变与认知能力下降、功能障碍、照顾者痛苦和护理的可获得性有关。方法:我们使用的数据来自一项为期3年的前瞻性观察研究,共有141名痴呆症患者在家,使用布里斯托尔日常生活活动量表、神经精神量表和认知评估,以及自我报告和医疗保健相关数据。结果:在这里,我们表明,精神行为症状和日常生活活动困难,随认知能力下降而波动。每隔3个月提供677项日常生活活动和632份精神病学行为问卷。聚类显示了三个基于严重性的组。轻度认知能力下降与较高的照顾者焦虑有关,而最严重的群体与社区服务的互动更多,与医院的互动较少。结论:我们描述了痴呆症患者的行为症状和日常生活活动困难,提供了当前实践中通常未考虑的临床相关见解。我们提供了参与者的健康在他们的痴呆症进展的整体概述。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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