ENGAGE-TBI: adaptation of a community-based intervention to improve social participation after brain injury.

IF 1.5 4区 医学 Q4 NEUROSCIENCES
Jessica Kersey, Elnaz Alimi, Amy Roder McArthur, Hannah Marquez, Carolyn Baum, Elizabeth Skidmore, Joy Hammel
{"title":"ENGAGE-TBI: adaptation of a community-based intervention to improve social participation after brain injury.","authors":"Jessica Kersey, Elnaz Alimi, Amy Roder McArthur, Hannah Marquez, Carolyn Baum, Elizabeth Skidmore, Joy Hammel","doi":"10.1080/02699052.2025.2449927","DOIUrl":null,"url":null,"abstract":"<p><strong>Background: </strong>Social isolation is prevalent after traumatic brain injury (TBI) and has negative implications for health and well-being. Interventions targeting social participation show promise for reducing social isolation. We adapted a social participation intervention, ENGAGE, to meet the needs of people with TBI. ENGAGE relies on social learning and guided problem-solving to achieve social participation goals.</p><p><strong>Methods: </strong>This study was conducted in two phases. First, we conducted focus groups with 12 participants with TBI to inform adaptations. We then tested the adapted protocol (<i>n</i> = 6). Post-intervention interviews informed additional refinements. We collected preliminary data on feasibility and effects on social participation (Activity Card Sort, PROMIS Ability to Participate in Social Roles, PROMIS Satisfaction with Participation in Social Roles) and social isolation (PROMIS Social Isolation).</p><p><strong>Results: </strong>Intervention adaptations included simplified processes for developing goals and plans, simplified workbook materials, greater time for reflection on lessons learned, and expanded peer mentorship. ENGAGE-TBI resulted in high satisfaction for 80% of participants and high engagement in intervention for 100% of participants. Attendance and retention benchmarks were achieved. Improvements in social participation exceeded the minimal clinically important difference on all measures.</p><p><strong>Conclusions: </strong>The promising preliminary data support further investigation into the feasibility and effects of ENGAGE-TBI.</p>","PeriodicalId":9082,"journal":{"name":"Brain injury","volume":" ","pages":"1-8"},"PeriodicalIF":1.5000,"publicationDate":"2025-01-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Brain injury","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1080/02699052.2025.2449927","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q4","JCRName":"NEUROSCIENCES","Score":null,"Total":0}
引用次数: 0

Abstract

Background: Social isolation is prevalent after traumatic brain injury (TBI) and has negative implications for health and well-being. Interventions targeting social participation show promise for reducing social isolation. We adapted a social participation intervention, ENGAGE, to meet the needs of people with TBI. ENGAGE relies on social learning and guided problem-solving to achieve social participation goals.

Methods: This study was conducted in two phases. First, we conducted focus groups with 12 participants with TBI to inform adaptations. We then tested the adapted protocol (n = 6). Post-intervention interviews informed additional refinements. We collected preliminary data on feasibility and effects on social participation (Activity Card Sort, PROMIS Ability to Participate in Social Roles, PROMIS Satisfaction with Participation in Social Roles) and social isolation (PROMIS Social Isolation).

Results: Intervention adaptations included simplified processes for developing goals and plans, simplified workbook materials, greater time for reflection on lessons learned, and expanded peer mentorship. ENGAGE-TBI resulted in high satisfaction for 80% of participants and high engagement in intervention for 100% of participants. Attendance and retention benchmarks were achieved. Improvements in social participation exceeded the minimal clinically important difference on all measures.

Conclusions: The promising preliminary data support further investigation into the feasibility and effects of ENGAGE-TBI.

ENGAGE-TBI:适应社区干预以提高脑损伤后的社会参与。
背景:社会孤立在创伤性脑损伤(TBI)后普遍存在,并对健康和福祉产生负面影响。针对社会参与的干预措施有望减少社会孤立。我们采用了一种社会参与干预,ENGAGE,来满足TBI患者的需求。ENGAGE依靠社会学习和引导解决问题来实现社会参与目标。方法:本研究分为两期进行。首先,我们与12名TBI参与者进行了焦点小组讨论,以了解适应情况。然后我们测试了调整后的方案(n = 6)。干预后的访谈通知了进一步的改进。我们收集了关于社会参与(活动卡分类、PROMIS参与社会角色的能力、PROMIS参与社会角色的满意度)和社会隔离(PROMIS社会隔离)的可行性和影响的初步数据。结果:干预措施的调整包括简化了制定目标和计划的过程,简化了练习册材料,有更多的时间反思经验教训,并扩大了同伴指导。参与- tbi导致80%的参与者的高满意度和100%的参与者的高参与干预。达到了出勤和留校的基准。社会参与方面的改善在所有指标上都超过了最小的临床重要差异。结论:初步数据支持进一步研究ENGAGE-TBI的可行性和效果。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
求助全文
约1分钟内获得全文 求助全文
来源期刊
Brain injury
Brain injury 医学-康复医学
CiteScore
3.50
自引率
5.30%
发文量
148
审稿时长
12 months
期刊介绍: Brain Injury publishes critical information relating to research and clinical practice, adult and pediatric populations. The journal covers a full range of relevant topics relating to clinical, translational, and basic science research. Manuscripts address emergency and acute medical care, acute and post-acute rehabilitation, family and vocational issues, and long-term supports. Coverage includes assessment and interventions for functional, communication, neurological and psychological disorders.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信