Transition clinics in pediatric rheumatology in Colombia: reflection on a necessary shortcomings.

IF 2.1 4区 医学 Q3 RHEUMATOLOGY
Lauren Natalia Ramirez, María Elisa Hoyos, Angela Catalina Mosquera-Pongutá, Gerardo Quintana-López
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引用次数: 0

Abstract

Introduction: Transition clinics are conceived as programs dedicated to the active, multidimensional development of a process that addresses the medical, psychosocial, educational, and vocational needs of pediatric patients suffering from a chronic disease that will persist into adulthood. Their understanding is justified in physiological, psychological, and sociocultural terms on the basis of the differential morbidity and mortality associated with a chronic disease that begins in childhood and prevails into adulthood.

Materials and methods: Here, we reflect on the history, structure, and impact of transition clinics in pediatrics, with an emphasis on pediatric rheumatologic diseases. Additionally, we propose comprehensive reflection as an alternative for the patient, their family, and the medical team, outlining guidelines for development, implementation, and evaluation.

Results: The transition of care should commence in early adolescence, considering each patient's cognitive ability as a condition for the initiation of an educational process involving introspection into the disease. Interdisciplinarity is defined as a team that addresses the clinical, physical, emotional, and social dimensions of each patient and their interaction with the environment within the framework of individualized care and family support. Despite this, the lack of evidence supporting standardized guidelines for the implementation and overall effectiveness evaluation of these interventions was highlighted.

Conclusions: The transition process is considered successful when the patient is adherent and has a positive and informed perception of their health‒disease journey. We urge the generation of evidence documenting the comprehensiveness of processes inherent to transition clinics as the foundation of necessity.

哥伦比亚儿科风湿病的过渡诊所:对必要缺点的反思。
简介:过渡诊所被认为是一个致力于积极、多维发展的过程的项目,该过程解决了患有慢性疾病并将持续到成年的儿科患者的医疗、社会心理、教育和职业需求。他们的理解在生理、心理和社会文化方面是合理的,这是基于一种始于儿童期并持续到成年期的慢性病的不同发病率和死亡率。材料和方法:在这里,我们反思儿科过渡诊所的历史、结构和影响,重点是儿科风湿病。此外,我们建议全面反思作为患者、家属和医疗团队的替代方案,概述了制定、实施和评估的指导方针。结果:护理的过渡应该在青春期早期开始,考虑到每个病人的认知能力作为一个条件,开始一个教育过程,包括自省到疾病。跨学科被定义为一个团队,在个性化护理和家庭支持的框架内,解决每个病人的临床、身体、情感和社会方面的问题,以及他们与环境的互动。尽管如此,仍强调缺乏证据支持这些干预措施的实施和总体有效性评估的标准化指南。结论:当患者坚持并对他们的健康-疾病之旅有积极和知情的看法时,过渡过程被认为是成功的。我们敦促产生证据,证明过渡诊所固有的过程的全面性,作为必要性的基础。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Advances in Rheumatology
Advances in Rheumatology Medicine-Rheumatology
CiteScore
4.00
自引率
4.30%
发文量
41
审稿时长
53 weeks
期刊介绍: Formerly named Revista Brasileira de Reumatologia, the journal is celebrating its 60th year of publication. Advances in Rheumatology is an international, open access journal publishing pre-clinical, translational and clinical studies on all aspects of paediatric and adult rheumatic diseases, including degenerative, inflammatory and autoimmune conditions. The journal is the official publication of the Brazilian Society of Rheumatology and welcomes original research (including systematic reviews and meta-analyses), literature reviews, guidelines and letters arising from published material.
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