Collecting Feedback From Neurologists and Patients to Guide Development of a Parkinson Disease App (DigiPark): Qualitative, Noninterventional Study.

IF 2.6 Q2 HEALTH CARE SCIENCES & SERVICES
JMIR Human Factors Pub Date : 2024-12-31 DOI:10.2196/55032
Martin Duracinsky, Eva Brown Hajdukova, Fabienne Péretz, Julie Sauzin, Neziha Gouider-Khouja, Caroline Atlani, Djamchid Dalili
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Abstract

Background: Parkinson disease (PD) is a worldwide, fast-growing, progressive neurodegenerative condition. Its multifaceted clinical presentation includes a wide range of motor and nonmotor symptoms. Smartphones present a potential solution to better monitor and subsequently alleviate PD symptoms.

Objective: The aim of this study is to explore neurologists' and patients' needs and preferences regarding the design and functionality of a new smartphone app for PD, DigiPark.

Methods: This qualitative, noninterventional study gathered data through two primary methods: (1) by conducting interviews with 9 neurologists and (2) through a usability test including 5 patients with PD.

Results: The neurologists affirmed the necessity for a patient-centered app, highlighting the complexities of PD management. They advocated for personalized app functionalities to improve patients' quality of life and emphasized the need for enhanced patient-provider communication. Feedback from the usability test indicated a preference for a clear, simple user interface, as well as elucidation of the app's benefits. Concerns about the app's time demands and the complexity of certain features like medication management were expressed. Furthermore, patients with PD consistently showed interest in features that could track and monitor their progress over time. This highlights the need to include clear benefits within the app to maintain user engagement and commitment.

Conclusions: Neurologists' and patients' feedback on the design and functionality of the app complement each other. Collaborative efforts in shaping the app should better address genuine PD management needs. Future clinical trial inclusion can further validate the efficacy of DigiPark.

收集神经科医生和患者的反馈以指导帕金森病应用程序(DigiPark)的开发:定性,非介入性研究。
背景:帕金森病(PD)是一种全球范围内快速发展的进行性神经退行性疾病。其多方面的临床表现包括广泛的运动和非运动症状。智能手机提供了一种潜在的解决方案,可以更好地监测并随后减轻PD症状。目的:本研究的目的是探讨神经科医生和患者对新的PD智能手机应用程序DigiPark的设计和功能的需求和偏好。方法:本定性、非介入性研究通过两种主要方法收集数据:(1)对9名神经科医生进行访谈;(2)对5名PD患者进行可用性测试。结果:神经科医生肯定了以患者为中心的应用程序的必要性,强调了PD管理的复杂性。他们提倡个性化的应用程序功能,以提高患者的生活质量,并强调需要加强患者与提供者的沟通。可用性测试的反馈表明,用户更倾向于一个清晰、简单的用户界面,以及对应用好处的说明。人们对这款应用的时间需求和药物管理等某些功能的复杂性表示担忧。此外,PD患者始终对能够跟踪和监测其进展的特征表现出兴趣。这就强调了在应用中包含明确的好处以保持用户粘性和忠诚度的必要性。结论:神经科医生和患者对应用程序设计和功能的反馈是互补的。共同努力塑造应用程序应该更好地解决真正的PD管理需求。未来纳入的临床试验可以进一步验证DigiPark的疗效。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
JMIR Human Factors
JMIR Human Factors Medicine-Health Informatics
CiteScore
3.40
自引率
3.70%
发文量
123
审稿时长
12 weeks
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