Exploring the Italian Population's attitudes toward health data sharing for healthcare purpose and scientific research: a cross-sectional study.

G Scaioli, G Lo Moro, M Martella, A Mara, M G Varì, C Previti, E Rolfini, A Scacchi, F Bert, R Siliquini
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Abstract

Background: This study aimed to explore the Italian population's knowledge and perceptions regarding health data storage and sharing for treatment and research and to identify factors associated with citizens' attitudes toward data storage and sharing.

Methods: A cross-sectional questionnaire, distributed to 1389 participants, collected sociodemographic information, assessed knowledge and gauged attitudes toward sharing data for treatment and research. Descriptive analyses and logistic regressions were performed to examine the associations between sociodemographic factors and knowledge/attitudes about data storage and sharing.

Results: Most respondents wrongly believed that healthcare providers could access personal health-related data across the entire national territory, while 94% expressed willingness to share personal health data nationwide. A substantial percentage of respondents (73%) fully agreed that storing and sharing personal health-related data could improve research and quality of care.Males and younger individuals (<41 years) were likelier to have higher data-sharing knowledge. Lower educational-level respondents exhibited lower positive attitudes towards sharing health data for treatment and research purposes.

Conclusions: The results provide valuable insights for policymakers, healthcare professionals and researchers seeking to improve data management, promote collaboration and leverage the full potential of health data for personalized care and scientific advancements.

探索意大利人口对医疗保健目的和科学研究的健康数据共享的态度:一项横断面研究。
背景:本研究旨在探讨意大利人口对医疗和研究数据存储和共享的知识和看法,并确定与公民对数据存储和共享态度相关的因素。方法:对1389名参与者进行横断面问卷调查,收集社会人口学信息,评估知识和衡量对治疗和研究共享数据的态度。描述性分析和逻辑回归检验了社会人口因素与数据存储和共享知识/态度之间的关系。结果:大多数受访者错误地认为医疗保健提供者可以在全国范围内访问个人健康相关数据,而94%的受访者表示愿意在全国范围内共享个人健康数据。相当大比例的受访者(73%)完全同意存储和共享个人健康相关数据可以改善研究和护理质量。结论:研究结果为决策者、医疗保健专业人员和研究人员提供了有价值的见解,这些研究人员正在寻求改进数据管理、促进协作和充分利用健康数据的潜力,以实现个性化护理和科学进步。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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