Parental experiences, coping and the impact of Family Burn Camp after paediatric burn injury: A qualitative study

IF 3.2 3区医学 Q2 CRITICAL CARE MEDICINE

Burns Pub Date : 2024-12-04 DOI:10.1016/j.burns.2024.107344

Victoria Schei , Anne Berit Guttormsen , Lina S.T. Lernevall , Stian Kreken Almeland , Margrethe Aase Schaufel

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引用次数: 0

Abstract

Background

Paediatric burn injuries constitute a transformative event for parents, shaping their lives in profound ways. This study explores parental experiences, coping mechanisms, and the impact of Family Burn Camp in the aftermath of paediatric burn injuries.

Methods

A qualitative study was conducted in 2019 comprising two focus group interviews with 15 parents at the Family Burn Camp in Stavern, Norway. Data was analysed using systematic text condensation.

Results

Four categories emerged outlining parental experiences and coping strategies: 1) From acute chaos to a scarred future; 2) The paradox of being a helper and being the one who needs help; 3) Being isolated as parents of burnt children and 4) Coping through dialogue, empowerment and Family Burn Camp. Balancing the role of caregiver while seeking support, parents often experienced emotional breakdown after completion of the child’s wound treatment, leading to loss of work function. Coping strategies emerged through fostering the child's self-esteem, with Family Burn Camp emerging as a beacon, deemed “worth more than a thousand therapy sessions”.

Conclusions

Our findings suggest that increased psychological and economic support are needed during and after the child's physical recovery. Family Burn Camp is a crucial element in the rehabilitation process for the whole family.

查看原文本刊更多论文

儿童烧伤后父母经历、应对及家庭烧伤营的影响：一项质性研究。

背景：儿科烧伤对父母来说是一个变革性的事件，深刻地塑造了他们的生活。本研究探讨了儿童烧伤后父母的经历、应对机制和家庭烧伤营的影响。方法：2019年进行了一项定性研究，包括两次焦点小组访谈，采访了挪威斯塔文家庭烧伤营的15名家长。数据分析使用系统文本浓缩。结果：父母的经历和应对策略分为四类：1)从极度混乱到伤痕累累的未来；2)帮助者与需要帮助者的矛盾；3)作为被烧伤儿童的父母被孤立；4)通过对话、赋权和家庭烧伤营来应对。在寻求支持的同时平衡照顾者的角色，父母在完成孩子的伤口治疗后经常经历情绪崩溃，导致工作功能丧失。通过培养孩子的自尊，应对策略应运而生，“家庭烧伤营”成为一盏明灯，被认为“比一千次治疗更有价值”。结论：我们的研究结果表明，在儿童身体康复期间和之后，需要增加心理和经济支持。家庭烧伤营是整个家庭康复过程中的一个关键因素。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Burns 医学-皮肤病学

CiteScore

4.50

自引率

18.50%

发文量

304

审稿时长

72 days

期刊介绍： Burns aims to foster the exchange of information among all engaged in preventing and treating the effects of burns. The journal focuses on clinical, scientific and social aspects of these injuries and covers the prevention of the injury, the epidemiology of such injuries and all aspects of treatment including development of new techniques and technologies and verification of existing ones. Regular features include clinical and scientific papers, state of the art reviews and descriptions of burn-care in practice. Topics covered by Burns include: the effects of smoke on man and animals, their tissues and cells; the responses to and treatment of patients and animals with chemical injuries to the skin; the biological and clinical effects of cold injuries; surgical techniques which are, or may be relevant to the treatment of burned patients during the acute or reconstructive phase following injury; well controlled laboratory studies of the effectiveness of anti-microbial agents on infection and new materials on scarring and healing; inflammatory responses to injury, effectiveness of related agents and other compounds used to modify the physiological and cellular responses to the injury; experimental studies of burns and the outcome of burn wound healing; regenerative medicine concerning the skin.