"I'll do it on my own, but I'm never alone"[1 p. 402]: lived experience and practitioner perspectives of autonomy in longstanding and severe eating disorder treatment and recovery-a rapid evidence review.

IF 3.5 3区 医学 Q2 NUTRITION & DIETETICS
Freddy Burke, Maree Higgins, Maureen MacGinley
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引用次数: 0

Abstract

Purpose: To examine autonomy within treatment and recovery from longstanding and severe eating disorders (EDs).

Background: The typically early age of onset, high incidence, and prolonged duration of EDs, has a high personal, relational, and financial burden for people who experience them. Current treatment practices rely on the exertion of external control and influence which has profound impacts on people living with EDs as well as the relationship and interactions between them and their treating professionals. Yet scant research focuses specifically on how people with EDs, especially longstanding and severe presentations, experience autonomy. Centring the lived experience voice is essential to deconstruct power imbalances and develop more effective recovery pathways.

Methods: A Rapid Evidence Review answered the research question, How do people with longstanding and severe eating disorders experience autonomy and recovery? Five electronic databases, the International Journal of Eating Disorders, and topic-specific grey literature from 2000-2021 were systematically searched. Twenty articles met the inclusion criteria. All findings and primary lived experience quotations relevant to the review topic were extracted, charted, and analysed. Reflexive Thematic Analysis (Braun and Clarke in Qual Psychol 9:3-26, 2021; Braun and Clarke in Qual Res Psychol 3:77-101, 2006;) was undertaken to inform the key findings and discussion.

Findings: The researchers identified four central themes that characterise the experience of autonomy in treatment and recovery for people with longstanding and severe EDs: Self versus ED, Self in Treatment, Self in Recovery, and Others in Relation to Self. Novel theoretical contributions to understanding longstanding and severe EDs include the 'Lack of Autonomy' Loop, 'Relational Autonomy' and the diversity of definitions of recovery.

Discussion: This review highlights the critical role of autonomy in the treatment and recovery of individuals with longstanding and severe EDs. It underscores the importance of addressing past trauma and integrating trauma-focused therapy within ED treatment. The findings advocate for collaborative, tailored, and autonomy-supportive approaches that empower individuals to break the cycle of disempowerment and promote sustained recovery.

Conclusion: The review highlights the need for conceptual and practice development to leverage desire-focused, relational approaches for effective healing and recovery.

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来源期刊
Journal of Eating Disorders
Journal of Eating Disorders Neuroscience-Behavioral Neuroscience
CiteScore
5.30
自引率
17.10%
发文量
161
审稿时长
16 weeks
期刊介绍: Journal of Eating Disorders is the first open access, peer-reviewed journal publishing leading research in the science and clinical practice of eating disorders. It disseminates research that provides answers to the important issues and key challenges in the field of eating disorders and to facilitate translation of evidence into practice. The journal publishes research on all aspects of eating disorders namely their epidemiology, nature, determinants, neurobiology, prevention, treatment and outcomes. The scope includes, but is not limited to anorexia nervosa, bulimia nervosa, binge eating disorder and other eating disorders. Related areas such as important co-morbidities, obesity, body image, appetite, food and eating are also included. Articles about research methodology and assessment are welcomed where they advance the field of eating disorders.
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