Disability justice and collective access to labour and delivery care: a qualitative study.

IF 2.8 2区 医学 Q1 OBSTETRICS & GYNECOLOGY
Meredith Evans, Lesley A Tarasoff, Yona Lunsky, Kate Welsh, Laurie Proulx, Susan M Havercamp, Susan L Parish, Hilary K Brown
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引用次数: 0

Abstract

Background: People with disabilities experience perinatal health disparities. This qualitative study examines disabled people's experiences of labour and delivery care from a disability justice lens.

Methods: Semi-structured interviews were conducted between July 2019 and February 2020 with 31 women and transgender people aged 18-45 years with physical, sensory, and/or intellectual/developmental disabilities, who were living in in Ontario, Canada and had given birth in the previous five years.

Results: People with disabilities described negative experiences of provider-driven, disrespectful, and discriminatory labour and delivery care that can be interpreted as examples of disability injustice and obstetric ableism. People with disabilities also described positive experiences of collaborative, respectful, and disability-affirming labour and delivery care that can be interpreted as examples of disability justice, facilitated by what feminist disability justice scholars and activists call collective access.

Conclusions: Collective access to labour and delivery care can improve perinatal health care for people with disabilities and promote disability justice. Reimagining care-related decision-making as an interdependent, collaborative, respectful, and disability-affirming process shared between patients and providers can help to facilitate collective access to labour and delivery care.

残疾正义和集体获得劳动和分娩护理:一项定性研究。
背景:残疾人经历围产期健康差异。本定性研究从残疾司法的角度考察了残疾人的劳动和分娩护理经验。方法:在2019年7月至2020年2月期间,对31名年龄在18-45岁、患有身体、感官和/或智力/发育障碍的女性和变性人进行了半结构化访谈,这些人居住在加拿大安大略省,并在过去五年内生育过。结果:残疾人描述了提供者驱动的、不尊重的和歧视性的劳动和分娩护理的负面经历,这可以被解释为残疾不公正和产科残疾歧视的例子。残疾人还描述了合作、尊重和肯定残疾的劳动和分娩护理的积极经历,这些经历可以被解释为残疾正义的例子,由女权主义残疾正义学者和活动家所谓的集体接触来促进。结论:集体获得分娩和分娩护理可以改善残疾人的围产期保健,促进残疾正义。将与护理相关的决策重新设想为患者和提供者之间共享的相互依赖、协作、尊重和残疾确认过程,有助于促进集体获得分娩和分娩护理。
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来源期刊
BMC Pregnancy and Childbirth
BMC Pregnancy and Childbirth OBSTETRICS & GYNECOLOGY-
CiteScore
4.90
自引率
6.50%
发文量
845
审稿时长
3-8 weeks
期刊介绍: BMC Pregnancy & Childbirth is an open access, peer-reviewed journal that considers articles on all aspects of pregnancy and childbirth. The journal welcomes submissions on the biomedical aspects of pregnancy, breastfeeding, labor, maternal health, maternity care, trends and sociological aspects of pregnancy and childbirth.
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