Supporting individuals with a visible difference: A UK survey of needs and preferences.

IF 5.2 1区 心理学 Q1 PSYCHIATRY
Clare Clement, Wylde Roberts-Mills, Maia Thorton, Alex Clarke, Abbi Mathews, Fabio Zucchelli, Paul White, Amy Slater, Diana Harcourt
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引用次数: 0

Abstract

Individuals with visible differences, resulting from injuries, health conditions, or treatment, can face varied and lasting psychosocial effects. Existing psychosocial interventions are limited, with inconsistent support noted by specialists. Improved provision and accessibility are crucial; yet, the self-perceived needs remain underreported. This study explored the self-reported support needs of affected adults to better understand their needs and inform support provision. An online survey conducted in the UK from October to December 2022 inquired about support preferences, delivery methods, and current and future anticipated considerations when seeking assistance. Quantitative data were analyzed statistically, and open-ended responses were analyzed using qualitative content analysis. Five hundred and fifty individuals (aged 18-82 years; 489 (88.9 %) female) participated. The majority (80.5 %) wanted more information on potential treatments, while 53.6 % wanted insights into causes, and 61.3 % wanted help accepting their appearance. Preferred sources included healthcare professionals (89.3 %), online/digital platforms (websites 65.8 %, online support groups 47.6 %) and in-person support (counseling (45.8 %), support groups (37.5 %)). Participants' support-seeking decisions were influenced by access to condition-specific information, evidence-based practices, and healthcare professional awareness. Individuals with visible differences require holistic support from various providers, delivered in a range of formats. Findings can inform support strategies and services.

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来源期刊
Body Image
Body Image Multiple-
CiteScore
8.70
自引率
28.80%
发文量
174
期刊介绍: Body Image is an international, peer-reviewed journal that publishes high-quality, scientific articles on body image and human physical appearance. Body Image is a multi-faceted concept that refers to persons perceptions and attitudes about their own body, particularly but not exclusively its appearance. The journal invites contributions from a broad range of disciplines-psychological science, other social and behavioral sciences, and medical and health sciences. The journal publishes original research articles, brief research reports, theoretical and review papers, and science-based practitioner reports of interest. Dissertation abstracts are also published online, and the journal gives an annual award for the best doctoral dissertation in this field.
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