"Are we genuinely going to have our voices heard?" The experience of co-producing a blended intervention to prevent relapse in obsessive-compulsive disorder: a qualitative study on the perspectives of experts by lived experience.

IF 3.4 2区 医学 Q2 PSYCHIATRY
Josie F A Millar, Nina Higson-Sweeney, Tom A Jenkins, Erin F Waites, Sophie Minns
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Abstract

Introduction: Co-production involves researchers, practitioners and people with lived experience working in a collaborative manner, with shared power. The potential benefits of co-production are well documented. However, there is little research describing the experience of having been involved in co-production from the perspective of Experts By Lived Experience (EBLE). The aim of the present study is to explore the experiences of EBLE of obsessive-compulsive disorder (OCD) on their involvement in co-producing a blended intervention to prevent relapse for OCD.

Methods: Five EBLE took part in semi-structured interviews enquiring about their experiences of co-producing a relapse prevention intervention. Reflexive thematic analysis was used to analyse the data.

Results: Four themes were developed: (1) Welcome but unexpected therapeutic benefits; (2) The parameters of a safe space; (3) Genuine co-production brings meaningful change; and (4) Navigating the challenging terrain of co-production.

Conclusions: Overall, EBLE reported their involvement in the co-production process to have had positive impacts on both the development of the intervention and their own personal recovery journey. EBLE valued the safety created within the group, and the importance this had for allowing them to speak open and honestly about their experiences and the difficulties that can arise with the nature of the work.

“我们真的会让别人听到我们的声音吗?”共同生产预防强迫症复发的混合干预的经验:专家视角的生活经验定性研究。
简介:联合生产涉及研究人员、从业人员和有生活经验的人以合作的方式工作,分享权力。合作制作的潜在好处是有据可查的。然而,很少有研究从专家生活经验(EBLE)的角度描述参与合作制作的经验。本研究的目的是探讨强迫症(OCD)的EBLE参与共同制定混合干预措施以防止强迫症复发的经验。方法:对5名EBLE患者进行半结构化访谈,询问他们共同实施预防复发干预的经验。采用自反性主题分析对数据进行分析。结果:发展了四个主题:(1)受欢迎但意想不到的治疗效果;(2)安全空间参数;(3)真正的合拍片带来有意义的变化;(4)应对合作制片的挑战。结论:总体而言,EBLE报告称,他们参与联合制作过程对干预措施的发展和他们自己的个人康复之旅都产生了积极的影响。EBLE重视团队内部创造的安全性,以及允许他们公开和诚实地谈论他们的经历以及工作性质可能出现的困难的重要性。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
BMC Psychiatry
BMC Psychiatry 医学-精神病学
CiteScore
5.90
自引率
4.50%
发文量
716
审稿时长
3-6 weeks
期刊介绍: BMC Psychiatry is an open access, peer-reviewed journal that considers articles on all aspects of the prevention, diagnosis and management of psychiatric disorders, as well as related molecular genetics, pathophysiology, and epidemiology.
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