Jovi C Y Wong, Meera D Sivalingam, Matthew Griffin, John Magagna, Bita Momenaei, Taku Wakabayashi, Roselind L Ni, Kristine Y Wang, Michael J Ammar, Jason Hsu, Yoshihiro Yonekawa
{"title":"Sickle Cell Retinopathy Lost to Follow-up Study.","authors":"Jovi C Y Wong, Meera D Sivalingam, Matthew Griffin, John Magagna, Bita Momenaei, Taku Wakabayashi, Roselind L Ni, Kristine Y Wang, Michael J Ammar, Jason Hsu, Yoshihiro Yonekawa","doi":"10.1097/IAE.0000000000004369","DOIUrl":null,"url":null,"abstract":"<p><strong>Purpose: </strong>To determine the outcomes of sickle cell retinopathy (SCR) patients who experienced at least one episode of being lost to follow-up (LTFU) compared to those who attended all appointments.</p><p><strong>Methods: </strong>Adult SCR patients who visited Wills Eye Hospital Retina service (January 2012-December 2021) with >2 visits were reviewed for LTFU events, defined as failure to return for a follow-up appointment within 6 months of the scheduled date.</p><p><strong>Results: </strong>One hundred and eighty-one eyes of 94 patients were included. Fifty-one patients (99 eyes) attended all appointments (\"attended group\") whilst 43 patients (82 eyes), or 46%, had at least one LTFU event (\"LTFU group\"). The mean (standard deviation, SD) LTFU duration was 470 (329) days. In the LTFU group, mean (SD) VA was significantly worse at the final visit (logMAR 0.45 (0.63), Snellen 20/56) and at the post-LTFU visit (0.36 (0.59), 20/46) compared to the pre-LTFU visit (0.3 (0.47), 20/40, p = 0.001). In the attended group, mean (SD) VA was significantly better at the final visit (0.41 (0.63), 20/51) compared to the initial visit (0.52 (0.78), 20/66, p = 0.038).</p><p><strong>Conclusion: </strong>Patients with SCR with an LTFU event have worse visual outcomes compared to patients who attend all appointments.</p>","PeriodicalId":54486,"journal":{"name":"Retina-The Journal of Retinal and Vitreous Diseases","volume":" ","pages":""},"PeriodicalIF":2.3000,"publicationDate":"2024-12-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Retina-The Journal of Retinal and Vitreous Diseases","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1097/IAE.0000000000004369","RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"OPHTHALMOLOGY","Score":null,"Total":0}
引用次数: 0
Abstract
Purpose: To determine the outcomes of sickle cell retinopathy (SCR) patients who experienced at least one episode of being lost to follow-up (LTFU) compared to those who attended all appointments.
Methods: Adult SCR patients who visited Wills Eye Hospital Retina service (January 2012-December 2021) with >2 visits were reviewed for LTFU events, defined as failure to return for a follow-up appointment within 6 months of the scheduled date.
Results: One hundred and eighty-one eyes of 94 patients were included. Fifty-one patients (99 eyes) attended all appointments ("attended group") whilst 43 patients (82 eyes), or 46%, had at least one LTFU event ("LTFU group"). The mean (standard deviation, SD) LTFU duration was 470 (329) days. In the LTFU group, mean (SD) VA was significantly worse at the final visit (logMAR 0.45 (0.63), Snellen 20/56) and at the post-LTFU visit (0.36 (0.59), 20/46) compared to the pre-LTFU visit (0.3 (0.47), 20/40, p = 0.001). In the attended group, mean (SD) VA was significantly better at the final visit (0.41 (0.63), 20/51) compared to the initial visit (0.52 (0.78), 20/66, p = 0.038).
Conclusion: Patients with SCR with an LTFU event have worse visual outcomes compared to patients who attend all appointments.
期刊介绍:
RETINA® focuses exclusively on the growing specialty of vitreoretinal disorders. The Journal provides current information on diagnostic and therapeutic techniques. Its highly specialized and informative, peer-reviewed articles are easily applicable to clinical practice.
In addition to regular reports from clinical and basic science investigators, RETINA® publishes special features including periodic review articles on pertinent topics, special articles dealing with surgical and other therapeutic techniques, and abstract cards. Issues are abundantly illustrated in vivid full color.
Published 12 times per year, RETINA® is truly a “must have” publication for anyone connected to this field.