Approaching neuro-palliative care with historically minoritized groups in the United States: A literature review and actionable recommendations.

IF 3.6 3区医学 Q1 CLINICAL NEUROLOGY

Journal of the Neurological Sciences Pub Date : 2025-01-15 Epub Date: 2024-11-30 DOI:10.1016/j.jns.2024.123333

Sahily Reyes-Esteves, Alvin Singh, Kylie Ternes, Adys Mendizabal

引用次数: 0

Abstract

This review critically examines neuro-palliative care disparities in historically minoritized groups in the U.S., particularly in Asian, Black, and Latino communities. Addressing a gap in the 2022 American Academy of Neurology guidelines, this review synthesizes current literature and our clinical experiences as neurologists who identify as members of these communities in diverse care settings. We identify common barriers to palliative care access and acceptance, influenced by cultural heterogeneity, mistrust, and systemic disparities. The review offers targeted, actionable recommendations at the provider, healthcare system, and policy level to improve care and reduce disparities.

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接近神经姑息治疗与历史上少数群体在美国：文献回顾和可操作的建议。

本综述批判性地考察了美国历史上少数民族的神经姑息治疗差异，特别是在亚洲，黑人和拉丁裔社区。为了填补2022年美国神经病学学会指南的空白，本综述综合了当前文献和我们作为神经学家在不同护理环境中确定为这些社区成员的临床经验。我们确定了受文化异质性、不信任和系统差异影响的姑息治疗获取和接受的常见障碍。该综述在提供者、医疗保健系统和政策层面提供了有针对性的、可操作的建议，以改善护理和减少差距。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of the Neurological Sciences 医学-临床神经学

CiteScore

7.60

自引率

2.30%

发文量

313

审稿时长

22 days

期刊介绍： The Journal of the Neurological Sciences provides a medium for the prompt publication of original articles in neurology and neuroscience from around the world. JNS places special emphasis on articles that: 1) provide guidance to clinicians around the world (Best Practices, Global Neurology); 2) report cutting-edge science related to neurology (Basic and Translational Sciences); 3) educate readers about relevant and practical clinical outcomes in neurology (Outcomes Research); and 4) summarize or editorialize the current state of the literature (Reviews, Commentaries, and Editorials). JNS accepts most types of manuscripts for consideration including original research papers, short communications, reviews, book reviews, letters to the Editor, opinions and editorials. Topics considered will be from neurology-related fields that are of interest to practicing physicians around the world. Examples include neuromuscular diseases, demyelination, atrophies, dementia, neoplasms, infections, epilepsies, disturbances of consciousness, stroke and cerebral circulation, growth and development, plasticity and intermediary metabolism.